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Phone: 425-827-8954
217 19th Place
Kirkland
Washington 98033
USA
Website

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Target demographics: Stimulate & Fund new Facioscapulohumeral Muscular Dystrophy (or FSH) research.  FSH is the most common form of Muscular Dystrophy yet, its research has been severely underfunded.  With new research we believe a treatment or cure will be possible.

Direct beneficiaries per year: 1-3 researchers

Someone who had 3 hours of volunteer time could: Help write letters

Talk to friends & tell others about this condition.

Ask their favorite restaurants, shops to donate an item or gift certificate for the annual fund raising auction.

Write a letter to their Senators asking for increased NIH funding for FSH research.

Make a donation to Friends of FSH Research.

Programs: Friends of FSH Research conducts an annual fundraising auction entitled "FiSHing for a Cure"; we work to obtain grants from foundations and individuals for FSHD research. We support FSHD research through public education, research conferences and fund raising. Our mission is to stimulate & support new efforts in Facioscapulohumeral Muscular Dystrophy research.

Mission:
Facioscapulohumeral Dystrophy, or FSH or FSHD, is a degenerative muscular disease for which there is no treatment or cure. Through increased public awareness and research funding, we believe a cure can be found. The specific objectives and purposes of the corporation shall be: 1. To encourage, promote and fund increased scientific and clinical research for Facioscapulohumeral Dystrophy, with the goal of identifying treatment and a cure for the disease. 2. To conduct fundraising efforts and solicit grants and contributions from individuals, private foundations and others, in order to sponsor research to advance the study and understanding of FSH. 3. To disseminate information about FSH and encourage additional public support for FSH research by raising public awareness of the need for more research funding.
Results:
After holding the first “FiSHing for a Cure” gala in 2005, the Friends of FSH Research has provided funding for numerous FSH pilot studies.  Many of the pilot projects have gone forward to qualify for greater funding by the MDA or the National Institutes of Health.  FSH research is moving forward!

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14 Reviews
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10/01/13
Great organization working to support research and events . really the only source of hope for many individuals living with muscular dystrophy. FSHD takes it all except hope! keep the dream alive guys... more »
04/27/13
I have worked with FSH for many years now. Having done years of events and fundraising, Terry and Rick reached out to me when they first started this charity years ago. I have been a donor and volunteer for many years. I can tell you that there is not a group of people that work harder to make their... more »
06/08/10
This is a wonderful organization! Their annual Silent Auction fundraiser raises hundreds of thousands of dollars to support FSH Muscular Dystrophy research. This organization has single handedly supported FSH Research at the University of Washington through it's efforts. Additionally, they have ... more »
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3 hours of volunteer time for this nonprofit will...

Help write letters

Talk to friends & tell others about this condition.

Ask their favorite restaurants, shops to donate an item or gift certificate for the annual fund raising auction.

Write a letter to their Senators asking for increased NIH funding for FSH research.

Make a donation to Friends of FSH Research.

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