No Stomach For Cancer saved my life - literally! After I had genetic testing that revealed I carried a rare gene that gave me an 80-90% chance of developing stomach cancer that couldn't be detected through screening, my genetic counselor referred me to NSFC and told me not to look at anything else on the internet. Through NSFC I found the surgeon who removed my stomach as a precautionary measure, but after surgery we learned that I'd had four spots of cancer that hadn't been detected prior to surgery. Having lost both my father (who was diagnosed as stage 1) and my grandfather very shortly after their diagnoses, I know that this cancer would have killed me if I hadn't pursued genetic testing and learned what I could do to avoid cancer and who specialized in working with this incredibly rare gene. The people at NSFC are all incredibly supportive and helpful, and their website is a treasure trove of useful information. Thanks to them, I'm now 15 months post surgery and have a long, healthy life to look forward to with my family!
So glad to say that this organization is and has help me and my family become more knowledgeable and aware about cancer. My mom was a 1st in our family an ordeal I wish no one. There needs to be more stomach awareness. Please pay attention to your body. My mom had stomach pain was in and out of emergency hospitals only to tell her she had acid refex or GERD. That all started September 2013. After all that her ordeal was confirmed April 10th 2014 stomach cancer stage 3 curable but with insurance referrals and waiting for appts it metas to her liver putting her at stage 4. Chemo could no longer help. If she continued she would just have all symptoms and for what no quality of life. She didnt want that. Some would say that when they pass they lots the fight. I see it as she move on to a better journey of eternal greatness. Tell we meet again mommy i love you forever and alway.
I found No Stomach for Cancer, Inc. after researching information regarding genetic counseling and inherited gastric cancer. I had the CDH1 testing done after my son's physician recommended it. Both my father and brother had gastric cancer and the information from this site has been invaluable. I did test negative for the gene but am continuously inspired by this community and all that they do to strongly support one another. Thank you for your continued research in this area and the important information you are communicating to the world.
No stomach for cancer was and has been wonderful at helping spread the word and knowledge of current statistics about stomach cancer! Their Facebook page has tremendously helped me! We just approached our one year anniversary of losing my mother in law to this horrible cancer! Through the FB page I am able to relate to other people who have gone through the same or are going through the same grief we have endured but more importantly they are trying to help fight this cancer by raising awareness and hopefully to allow more research! I'm thankful for being able to stay updated through their website and FB. It is my go to place when I need to do more than grieve!
This organization is wonderful at spreading awareness and raising funding for stomach cancer. They've worked so hard to get the word out and educate the public about this disease that takes so many lives. I've watched them go by leaps and bounds and accomplish so much. They've been so supportive, especially when my sister was diagnosed with stomach cancer.
When my mom was diagnosed with stomach cancer and I wanted to see if there was a way to arrange one last vacation for her in spite of her feeding tube, I scoured the internet for any possible resource, not knowing where to even begin. I found No Stomach for Cancer, emailed them, not expecting much, and was contacted the next day. Someone called, talked to me for a long time both asking questions so they could make some contacts for me and just talking and asking about my situation. She invited me to join the Facebook support group and sent me t-shirts and bracelets and told me to contact her if I needed anything else. So comforting and helpful when I was feeling very upset, confused, and uneducated. I'm so glad they do what they do, and I'm so touched they were willing to go well beyond that to try to help me.
Stomach cancer didn't have much of a voice until now. No Stomach for Cancer, Inc supports stomach cancer research and public awareness.Stomach cancer is the second leading cause of all cancer deaths in the world, yet far too little is known in the medical field and general public. Lives are needlessly claimed because the medical community is failing the victims of stomach cancer. This organization is working to change all that. It has been a Godsend in caring, supporting, and advocating for those of us affected by stomach cancer. In four short months, I lost the love of my life to this dreadful disease. Like so many, he was repeatedly told by doctors that he should just take antacids, and prescribed antibiotics. He left behind a family, including five beautiful children. We miss him dearly.
They are wonderful people! Someone to talk to, count on, and share with. A Help to people like me who have no one to turn to, to talk to about my husbands cancer. I can learn and share stories and know I'm not alone. And Yes, I donated to them instead of the ALS for the ice bucket challenge. They deserve a lot of recongnition!