Mission: The National Fragile X Foundation unites the Fragile X community to Enrich lives through educational and emotional support, Promote public and professional awareness, and Advance research toward improved treatments and a cure for Fragile X syndrome.
Results: Last year, the NFXF made extensive scientific and clinical research efforts towards improved treatments and a cure for Fragile X. We were able to spend substantial time on the phone with newly-diagnosed families, provide them with valuable information, resources and referrals on our website and connecting them with LINKS parent support groups and Fragile X clinics. We not only hosted our 13th International Fragile X Conference, but we were also able to provide scholarships to over 100 parents. As always, we are forever moving forward, and ensuring an ever-brighter future for individuals affected by Fragile X.
Programs: The National Fragile X Foundations provides the following: telephone and email consultation; detailed web site; free informational handbook and pamphlets; educational resources (books, videotapes and CDs); local, national, and international conference sponsorship; referral to medical, genetic and support services; educational advocacy; legislative advocacy; basic science and clinical research grants; quarterly journal.