National Foundation for Celiac Awareness

Rating: 4.8 stars   20 reviews

Issues:

Location: PO Box 544 Ambler PA 19002 USA

Mission: NFCA aims to increase detection and diagnosis of celiac disease and improve quality of life for individuals and families following the gluten-free lifestyle.

2011 Top-Rated Nonprofit
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Community Reviews

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Rating: 5 stars  

I have volunteered for the NFCA, I have been a donor to the NFCA and my family has benefited tremendously from all that the NFCA has to offer. The staff is professional and personable. The support is second to none. I have rarely seen such dedication from a group of individuals. The NFCA has changed lives, given our community options and empowered individuals. Bravo all the way!!!

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Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

A lot

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2013

Rating: 5 stars  

As a volunteer at the NFCA over the past two years, I have become increasingly impressed by how much this organization does for individuals with celiac disease. After being diagnosed with celiac disease myself, I reached out to the NFCA as a source of information and as a means to meet others living gluten-free. Their website (http://www.celiaccentral.org) is incredibly informative and is constantly being updated with new news on this disease. The NFCA is also active on social media, which helps to spread useful tips on the gluten-free diet, fosters a sense of community online, and continues to raise awareness. I feel lucky to have had the opportunity to volunteer with the NFCA.

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Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2013

Rating: 5 stars  

After I was diagnosed with celiac disease several years ago and made the transition to a gluten-free diet, I was looking for an CD organization to volunteer with. NFCA was my first choice. NFCA advocates for people with CD not only by disseminating accurate and up-to-date information, but by working with organizations, from medical providers to food service providers and restaurants. It's a lean organization that achieves a great deal. I am proud to be affiliated with NFCA!

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Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

A lot

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2013

Rating: 5 stars  

The NFCA has been a tremendous asset to the celiac and gluten-free community in the United States. They were there for us at the start when our older son was diagnosed with CD 10 years ago and continue to be a resource not only for those who have been managing a gluten-free diet over time, but also for the newly diagnosed.

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Would you volunteer for this group again?

Likely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2013

Role: Professional with expertise in this field
Rating: 2 stars  

1 people found this review helpful

NCFA has been a player in the Celiac community for years, and yet there's a lot of questions in terms of where the money raised goes for years.
I used to donate to NCFA, now I don't. I'm not comfortable any longer with the organization.
So please, answer the questions. How much is raised? How much goes to admin? Where does the $ from the events go? the amounts raised from the gala and amts spent on webinars and handouts just don't add up.
and for goodness sake, why start another GF cert program when there are already 2 in place?
I would love to feel comfortable supporting NCFA, but I can't until I have further info.

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I've personally experienced the results of this organization in...

I've donated...that's about it

If I had to make changes to this organization, I would...

suggest TRANSPARENCY with money. That way, if it's being used well, there are no questions, and if it's not, people are aware so they can make their decisions appropriately.

Role: General Member of the Public
Rating: 5 stars  

My daughter was diagnosed in February 2011. NFCA has been a great resource for our entire family. I love all the information available on their website, it's really the place to find any answer to questions about celiac disease.

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I've personally experienced the results of this organization in...

Understanding celiac disease the effects short term and long term. How to care for a child with Celiac's.

If I had to make changes to this organization, I would...

none

Rating: 5 stars  

1 people found this review helpful

I was diagnosed with Celiac Disease in March 2011 and the NFCA has been my sole location for information to help me cope. I've had contact with the people who run GREAT Kitchen's and they have been such a GREAT help in getting more restaurants on board in my area. The website is so easy to navigate and provides just what you are looking for. The events that the NFCA hosts have been wonderful as well as the information they provide to the public about awareness in getting tested regardless of symptoms. To think that I live in the very same town where the founder is from makes this organization that much more special for me. Keep up the GREAT work!

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I've personally experienced the results of this organization in...

I recently had a gluten attack due to a chain restaurant promoting that they have a gluten free menu however they are not GREAT Kitchen certified. I had then been contacted by the NFCA to help make this chain better for us with celiac.

If I had to make changes to this organization, I would...

Not change anything other than helping to advocate with them.

How would you describe the help you got from this organization?

A lot

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

How did you find this group?

I was given brochures from my doctor when I was diagnosed.

What, if any, change in your life has this group encouraged?

Eating out

When was your last experience with this nonprofit?

2011

Rating: 5 stars  

NFCA has been a wonderful resource for me even when I was on the path to being diagnosed with Celiac. The strides they are making in providing new and updated information to myself, and others is invaluable. I am constantly referring others I come across to this site as the "go-to" place for any information on the disease itself and going gluten-free.

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I've personally experienced the results of this organization in...

discovering foods with hidden glutens, finding restaurants with gluten free menus, and finding up-to-date information I could take to my Dr who had an extremely old-school view on Celiac disease.

If I had to make changes to this organization, I would...

the only thing I would change is to be more vocal on the Celiac awareness months/days. I receive e-mails, but I see no events say on the News or in Newspapers (at least in BC and AB).

Rating: 5 stars  

My daughter was diagnosed almost 2 years ago with celiac. At the beginning of our journey we had such a mixed bag of emotions... life without her basic core of foods, interpreting labels, at least it is a chronic disease that is controlled by food and not some pharmacological drug that could have long term side effects, and on and on.

Then the reality of cross contamination began for us. Time and again she would become ill from cross contaminated foods or by products that claimed to be gluten free but did not meet our needs. FDA involvement is so much more than a want, it is a desperate need.

This is where NFCA comes in. Our faith and trust in NFCA is 100%. If they back a product you know it is safe. They attend our support group meetings and education seminars. They open communication channels with restaurants so they understand the impact of cross contamination. Their push to get the FDA to establish regulations is nonstop.

My daughter's future gets better and better because of the dedication and continuous work of NFCA.

Supporting NFCA means ensuring the health and wellbeing of celiacs and gluten intolerants throughout the U.S..

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I've personally experienced the results of this organization in...

Every aspect of our daily lives.

If I had to make changes to this organization, I would...

Find methods for volunteers to do more grassroots type of campaigns in their neighborhoods.

Rating: 5 stars  

I have been involved with the NFCA for almost 7 years now. Under the leadership of Alice Bast, the NFCA has made an enormous impact on the lives of those living with celiac disease. The NFCA has promoted proper diagnosis, promoted greater availability of GF food and promoted awareness all the way from the NIH to the local grocery store. I truly feel that my twin daughters' quality of life are better thanks to the NFCA.

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I've personally experienced the results of this organization in...

Seeing the organizationat work first hand and seeing that it has a very personal and specific mission to improve the lives of people with celiac disease.

If I had to make changes to this organization, I would...

none

Would you volunteer for this group again?

Definitely

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