MPN RESEARCH FOUNDATION
Rating: 5 stars 1 review
Issues: Health, Philanthropy, Cancer
Location: 180 N Michigan Ave Ste 1870 Chicago IL 60601 USA
The MPD Foundation's primary mission is to stimulate originalMPD research in pursuit of new treatments and eventually a cure for polycythemiavera, primary myelofibrosis and essential thrombocythemia. In addition, the MPDFoundation promotes collaboration in the scientific community to accelerate MPD r esearch, and serves as a powerful patient advocacy group for MPD patients andtheir families.
Target demographics: MPN patients and their family members internationally; doctors who see MPN patients and researchers who work in MPN
Programs: Recently the MPD Foundation has awarded new grants through the Established Investigator and New Investigator grant programs. The MPD Foundation also hosts and sponsors educational symposia for patients as well as produces brochures and newsletters aiming to educate and empower patients.
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1 person found this review helpful
The MPD Foundation reached out to me after I found its website. I was newly-diagnosed with Polycythemia Vera and had many questions and fears. It maintains a resource-rich website with links to the latest in research and education. The Board chair and staff have provided me wonderful guidance and support. MPD Foundation financially supports research for these rare MPDs as well as patient advocacy. We are fortunate to have this organization and I will continue to support its mission.
I've personally experienced the results of this organization in...
its funding of important research for cures that otherwise would not occur.
What I've enjoyed the most about my experience with this nonprofit is...
it is my first stop for information on the latest MPD research. Through the website, I've connected with internet support groups comprised of patients around the world. This offers shared learning, support, and encouragement.
The kinds of staff and volunteers that I met were...
knowledgeable, supportive, and kind. They understand the challenges of living with an MPD and are great advocates for further research for cures.
How frequently have you been involved with the organization?
About every six months
When was your last experience with this nonprofit?