MPDCI has provided amazing services to our two children with cystic fibrois, who are now young adults. Summer after summer our family has been the beneficiaries of their generosity in providing tickets to places such as Michigan Adventure and Frankenmuth. For the past couple of summers, my youngest daughter Jamie has been able to attend cross country training camp. We are not a family of means, and thee activities are luxuries we most likely would have forgone otherwise. Casandra, our older daughter, has benefited semester after semester from the educational grant that MPDCI has provided for her. The people at MPDCI have such great hearts. Whenever we apply for a grant or scholarship, they communicate so professionally, and yet so compassionately. They have been patient when we have erred and they helped us to know what we needed to do in order to receive the grant/scholarship we were applying for. I guess, in a nutshell, it is obvious that they are passionate about assisting the CF community in as many ways as possible, and are delighted each time that they do just that. Because of distance, we do not actively engage in social activities they provide, and have participated in very little of their fundraising events. Yet, anyone I have ever talked to in that organization has treated me wonderfully. They are whole hearted, to be sure. It would be wonderful to see this organization recieve this grant, to encourage them for their great heart/efforts, and enable them to do even more. Children and young adults with CF often appear rather "normal" to most people, but to those of us who live with someone with CF, we know their daily challenges. But although we love them and seek to help them in everyway possible, we can never entirely understand what they go through. How grateful we are for an organization like MPDCI who heeps encouragement on these dear invididual.
My son has CF and MPDCI has helped him to not feel so isolated. With CF the patients are not to be near each other so often you feel like you are alone. MPDCI just reinforces that this is not something that he is the only one going thru.
Every summer when I was younger I would receive wonderful care packages from MPDCI. They were always full of fun toys from McDonalds gift certificates to craft kits. They were a great way to start the summer. Another thing about MPDCI I love is the family trips to Frankenmuth or Michigan Adventures Water Park. My family enjoyed taking these trips and having a break for the six of us was always nice. The digital cameras MPDCI provided were great for capturing the days memories. Now that I'm older, I receive grants from MPDCI for college. They come in handy, especially in this economy. I also look forward to joining MPDCI in some of the great opportunities they have for (young) adults with CF. MPDCI has been a great support for me personally and I love to wear my Beaver shirt!
MPDCI helped a very dear friend of mine receive a grant for transplant and is now living a more full life. I have watched this girl suffer since childhood and I don't think she could have survived without their help. We live in rural Michigan where health care is basic and patients with special needs have a more difficult road to go. She also speaks often about the connections she has made with other patients through your community. These connections have aided her in coping with her trials. All in all MPCDI needs to continue to operate.
MPDCI has been in our lives since 2004, sending our son, Brian to goalie camp every summer through '07 while he played ice hockey. We have enjoyed summer adventures and next month will be going to Chicago's Shedd's Aquarium, as we are attending orientation at Columbia College where Brian will be a freshman this fall. Over the years, MPDCI has sent care packages with gifts that brighten up the day. Their newsletters and personal connection with Brian has been a huge support for us all. I'm grateful for all their kindness and generosity as they help those families with a child with cystic fibrosis.
Michigan Pulmonary Disease Community Inc. is a great organization that brings smiles to faces of children who spend each day facing a life-threatening disease, and often find themselves undergoing proceedures, surgeries, treatments or hospital stays. My grand-daughter spends an average of three hours per day having medical treatments, and another chunk of time trying to eat enough high calorie food to maintain her weight and strength to face the next crisis. MPDCI encourages the kids with gift cards when they comply with their medical regimen, and a few times a year they send out care packages plus tickets to help them enjoy a summer family outing. It means a lot to know that someone understands and cares.
OUTSTANDING. This organization was founded by a small group to meet the needs of a few kids with CF to have a summer camp experience. It grew into a camp that met the needs of over 100 campers and as many volunteers. The only funds were those raised by the volunteers until a local group donated golf outing proceeds. When the camp closed, due to CDC policies, this group re-invented itself to meet the needs of kids with CF. Its many activities include Care Packages to younger children, outings for adults with CF, education and a Summer Adeventure for CF families, just to name a few.
My son Darin had Cystic Fibrosis and he had no friends or any peers he could relate to...When he turned 8 yrs. old he started at Camp Onkoi Beneck where all the kids with CF were made to feel normal. He had the best time of his life there with the projects, camp themes and friends and peers just like him. The only thing he looked forward to every year was camp and even when he passed away in June of "96" he was packed and planning his week away from us.
I was invited to particate in the MPDCI Camp Onkoi Benek in 1977. I never expected to develop some of the most important friendships I would have for the rest of my life. It led to 15 years of providing care in a CF Foundation approved Center that provided and continues to provide care for military dependents affected by Cystic Fibrosis. Some of the most profound relationships with patients and their families who have become friends have directed my patient care in many parts of my life. I met some of the most insightful young people I can imagine meeting because of my involvement with care of patients and families affected by Cystic Fibrosis. MPDCI and Camp Onkoi Benek have had a profound effect on my life and my profession.
When you hear the words "your child has cystic fibrosis" things seem bleak. You don't know who to relate to what to do...how are you going to explain this to your child as they grow older? When MPDCI came into our lives, it was awesome. They offer a community of people who really know just what you're going through. When my daughter receives a package in the mail from MPDCI it brings the best smile to her face. To receive the newsletter in the mail, is AWESOME! That gives you a glimpse into the lives of the other people living and coping with this devastating illness. The staff here should be commended for the joy and happiness they bring to the cystic fibrosis community.