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Michigan Lyme Disease Association

Rating: 4.94 stars   107 reviews 6,117

Address:

35431 Brush St. Wayne MI 48184 USA

Mission:

Our mission as the central voice in Michigan is to help prevent Lyme Disease and other Tick-Borne Disorders while helping to support research. Providing support and education to Lyme Disease patients, caregivers, Health Care Professionals and the general public. 

Target demographics:

with support, education and research on Tick-Borne Diseases.

Direct beneficiaries per year:

Research in Michigan, Doctor Education, Public Education

Geographic areas served:

State of Michigan

Programs:

Educational Lectures to Organizations/Businesses. Hosting Conferences to Educate Physicians. Supporting Research efforts. Setting up educational booths to educate the public. Setting up support groups to help patients.

2015 Top-Rated Nonprofit
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More Info

1-888-784-5963
www.mlda.org

Reviews for Michigan Lyme Disease Association

Role: General Member of the Public
Rating: 5 stars  

This organization has been a wealth of information for myself and loved ones whom I am trying to help. I have called members of the MLDA multiple times and they have always been receptive to answering my questions, providing direction to websites to visit or books to read, I cannot say enough good things about the caring demeanor of Linda and others in the MLDA. They have never solicited donations when I have called, rather at every turn they have been completely dedicated to helping and providing information. A true definition of a non-profit

 
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Role: General Member of the Public
Rating: 5 stars  

I do not have Lyme disease but this association has really informed me of the disease and what to look for and even how to educate others on what Lyme disease is. The MLDA has many brouchers and other informative materials. It truly is a great organization.

 
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Rating: 5 stars  

MLDA has been very helpful to me in negotiating treatment for my illness. They are a valuable tool for anyone in the state who has lyme disease.

 
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1 previous review
Rating: 5 stars  

1 person found this review helpful

This organization helped me tremendously when I needed information about my illness. I received support I needed such as doctor information, treatment options, support groups and online forums. I have referred several people here as well.

How would you describe the help you got from this organization?

A lot

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2014

 
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1 previous review
Rating: 5 stars  

1 person found this review helpful

I am thankful for Michigan Lyme Disease Association for assisting me after being diagnosed with this disease. My doctors didn't understand my illness and MLDA was instrumental in getting me a correct diagnosis and a doctor who could treat me. Don't know where I would be right now without their help!

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2013

 
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1 previous review
Rating: 5 stars  

1 person found this review helpful

The Michigan Lyme Disease Association is very important to people in Michigan because few people understand this illness. MLDA is a source of valuable information about doctors and also about the illness. I have referred MLDA to many people I know in order for them to get educated and diagnosed and ultimately treated for this disease. MLDA put on a conference last fall that had information for doctors as well as patients. It was a day long seminar with speakers from across the nation that provided excellent information related to testing, research and treatment. I also attend support group meetings and there is an online forum for ongoing information.

I've personally experienced the results of this organization in...

I've found an excellent doctor to treat my illness. I've shared what I've learned with others in my support group and online forum and have learned much from other members of the association. I find out what treatment options are out there.

What I've enjoyed the most about my experience with this nonprofit is...

the wonderful people I have met and the information I have recieved.

The kinds of staff and volunteers that I met were...

very kind, open and willing to help me with whatever I needed.

If this organization had 10 million bucks, it could...

provide funds to help those without insurance get treatment and help those with insurance pay for the many expenses not covered by insurance.

How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?

2007-1-01

 
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Role: General Member of the Public
Rating: 5 stars  

MDLA does a great job providing research and information on a disease that is severly misunderstood.

 
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Role: General Member of the Public
Rating: 5 stars  

MDLA does a great job providing research and information on a disease that is severly misunderstood.

 
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Rating: 5 stars  

Thank you to MDLA and Linda for being there to help educate the many thousands of people about Lyme Disease and Prevention.

 
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Rating: 5 stars  

1 person found this review helpful

I had Lyme Disease about 25 years ago and it went into remission. However it came back about 4-5 years ago. In googling it I found the MLDA and allied. The president directed me to a LLMD (which I had no clue what that meant then). They also sent me a lot of information on LD and answered a lot of questions. I was also given a list of names I could contact for support sand eventually started a support group in my area. I wouldn't be here today if it weren't for the MLDA. They supported me at my lowest points and ow I'm able to give back. They also have an e mail support for those that prefer that way as well as many FB groups on Lyme Disease. It's great getting new info and communicate with someone who understands what I'm going through. I will forever be grateful for this non profit organization

 
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1 previous review
Rating: 5 stars  

2 people found this review helpful

I am a member of the MLDA. I was so appreciative of how much I was able to learn from it's members and especially the board members that I joined the board. I have learned more about Lyme and received so much support from everyone involved in this charity. It is non profit and while so many of the individual board members have Lyme Disease and are therefore often sick, they put a lot of effort into helping others and are a wonderful source of support. They are very involved in all research and extremely knowledgeable in the various treatment options. They advocate on behalf of anyone that needs help. They are very involved in trying to keep the publice aware of what parts of the state of Michigan are at highest risk for places where the disease is showing up the highest. This is not to deter people from going to these parts but so they know to make sure they protect themselves if they are going to be outside in those locations. I can't say thank you enough to the board and all volunteers who are there to listen and help in any way possible.

If I had to make changes to this organization, I would...

There are no changes I can think of as far as this organization goes. The people are knowledgeable and helpful.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2014

 
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1 previous review
Rating: 5 stars  

2 people found this review helpful

There is no better non profit agency. I have dealt with many over the years and never received the support from it's members or board members. They are full of info that has helped me in more ways than I can count. Very informative and always trying to help doctors learn as well. The money is strictly used for Lyme. Everyone and everything done is through volunteers and the President. Without her and the volunteers I would be lost. They have also helped my family learn about Lyme so they better understand what I am going through.

If I had to make changes to this organization, I would...

There is nothing I would change. I just wish there were more ways I could offer support.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2013

 
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Role: General Member of the Public
Rating: 4 stars  

MLDA provides a wealth of information on all things Lyme related. I especially like their interest in homeopathic resources. As I've learned Lyme cannot be treated by conventional medications alone. Linda has been an invaluable resource and all the MLDA members owe her a great deal of gratitude.

 
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Rating: 5 stars  

linda has been there for me over and over michigan lyme is great they help so many people thank you

 
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1 previous review
Rating: 4 stars  

1 person found this review helpful

i feel very blessed to have this in michigan linda is wonderfull education is whats needed they provide that pam maize

I've personally experienced the results of this organization in...

yes

If I had to make changes to this organization, I would...

none

How would you describe the help you got from this organization?

A lot

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

How did you find this group?

afriend

What, if any, change in your life has this group encouraged?

help

 
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1 previous review
Rating: 5 stars  

2 people found this review helpful

Michigan Lyme has been a god send for me. I was at a point where I was runnung out of options. Then I contacted Michigan Lyme and was put on the right track for proper testing that confirmed the diagnosis. I have called for support and help many times and had nothing but good positive responces.

I've personally experienced the results of this organization in...

In the support and involement of it's members.

How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?

2010-6-01

 
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Rating: 5 stars  

1 person found this review helpful

I've had and been disabled with Lyme Disease for 25 yrs. It is a most serious and complicated disease. MLDA is vital to education, fundraising, outreach, in MI. The president, Linda Lobes, is an extremely devoted worker who has been a much need resource and support for myself as well as many other patients, physicians and others in MI. I can't say enough positive things about this organization.

 
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1 previous review
Rating: 5 stars  

3 people found this review helpful

MLDA is a continual source of valuble information and support for myself as well as hundreds of others. I visit the online support group almost daily. Sometimes I ask a question or sometimes I just learn by reading input from others. It helps me to not feel so isolated ecspecially when I'm unable to get out due to fatigue or head pain. MLDA is by far my favorite non=profit group!

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

A lot

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

 
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1 previous review
Rating: 5 stars  

1 person found this review helpful

Michigan Lyme Disease Association has organized support groups throughout the state as well as on line that provide Lyme Disease patients, family, and friends with education and support. This has been extremely helpful to me on my journey thru this difficult and devastating disease. I don't know what I'd do without it. Sometimes Lyme is disabling and the online support helps us to not feel so isolated and to be able to share information with each other. I know any monies that are won would go to great use as there is much education needed about Lyme, the fastest growing bacterial infection in America.

I've personally experienced the results of this organization in...

Support Groups Onlline Support Groups Educational Conventions Billboard on Highway (Informational) Toll Free Hot Line Educational Literature

If I had to make changes to this organization, I would...

Can't think of a thing.

 
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