MELANOMA INTERNATIONAL FOUNDATION

Rating: 4.81 stars   154 reviews

Issues: Cancer

Location: 250 Mapleflower Rd Glenmoore PA 19343 USA

Mission: To reduce the burden and bring understanding to the journey of melanoma. Through our helpline, online forum, and personal email, we help thousands of patients who are diagnosed with melanoma.
Programs: 1. Patient Outreach: helpline, forum, email assistance to over 5000 patients a year2. Send out our book and other educational materials to thousands.3. Educate: k-8, Save Your Skin Pledge for tanning salon prevention, lunch and learn webinars for early detection to many corporate entities.

2014 Top-Rated Nonprofit
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Community Reviews

Rating: 5 stars  

3 people found this review helpful

Nothing but praise for this organization. As a stage IIIC survivor for 8 yrs. My husband called Catherine in the middle of the night looking for answers and was treated with kindness and respect.
When I recurred at my 3 yr mark she was one of the first people I called. She was more knowledgeable about some of the trials than my own doctors. She was always willing to search for answers from one of the advisory board drs if she was unable to answer a question herself.
We really feel she was our guardian angel.

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1 previous review
Rating: 5 stars  

1 person found this review helpful

I started out as a client served. My husband found this great organization almost 4yrs ago while desperately searching for answers after receiving my stage IIIC diagnosis. Catherine spent many hours on the phone with us during our most difficult times and offered us accurate information and much needed support. I became involved in the forums when she started them, and have watched them grow into a place where people come from all over the world for support and accurate information. Although I'm currently doing well, she was the first person I turned to when I had my recur last summer. I know she works hard to keep informed of the latest developments. Great Job MIF! Shirley Z

I've personally experienced the results of this organization in...

My battle with melanoma, and the contributions she so willing makes to the forums answering questions and supplying accurate information.

How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?

2009-8-01

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1 previous review
Rating: 5 stars  

9 people found this review helpful

I was diagnosed in 2006 with stage IIIC melanoma. My husband found this site and we were so impressed by the immediate outpouring of information and compassion by Catherine Poole. She answered her own hotline and stuck by us during every step of our battle. We know that we can receive accurate and reliable information because the cite is hon code approved. This means alot.

I've personally experienced the results of this organization in...

The many events that they work so hard to sponsor to bring about awareness of melanoma. The sense of caring and accurate advise people receive when visiting the forums. I'm proud to be a part of this wonderful community.

What I've enjoyed the most about my experience with this nonprofit is...

The genuine caring . The accuracy of the information.

The kinds of staff and volunteers that I met were...

Wonderful!

If this organization had 10 million bucks, it could...

Continue with the mission that they do so well. Perhaps be able to raise even more awareness.

When was your last experience with this nonprofit?

2009-7-01

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Rating: 5 stars  

1 person found this review helpful

MIF is the one website I continually recommend to individuals and families dealing with melanoma for the first time. The compassion and knowledge shared by Ms. Poole and her staff is known internationally. I will continue to share the website with anyone confronting this disease and in need of support and care.

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Rating: 1 stars  

2 people found this review helpful

My sister has been fighting melanoma for many years. She is a highly intelligent nurse practitioner and her husband is a doctor. They have made it their life's work to investigate treatments for this disease and pass that information on to those in need. She does that through a blog and also through forums such as MIF. If she notices an inaccurate statement concerning these treatments, she will address it with the assumption that others share her concerns. However, the founder of this site apparently does not agree with this premise. In fact, she appears to have ulterior motives. My sister corrected a grossly inaccurate statement made by the founder about the success rate of one treatment option. Instead of being appreciative that this mistake could be corrected, the founder of this site was extremely rude. This is not the first time she treated my sister poorly on this site. I made a post expressing my disappointment. This post was promptly removed and I was "banned for life" from the site. She also removed an entire thread soliciting reviews for this site. I do not feel that the founder has other's best interest at heart.

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Rating: 5 stars  

3 people found this review helpful

I am appalled at the utterly distasteful attacking I am seeing on here from one single disgruntled person on this date. Seems a bit over the top for them to create so many random profiles trying to attack the good supporters of this wonderful Foundation during a promotional period in which reviews were encouraged (ends in a few days). I feel that they are personally trying to take down an organization that already has now won this promotional period, and therefore these negative reviews will do nothing but show how immature they are. I hope they can find peace and leave well enough alone. All of us supporters have had enough of the hate speech being spewed across the Internet.

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Rating: 5 stars  

1 person found this review helpful

This is a wonderful organization that truly puts the patient first in all that they do. I have had the pleasure of volunteering at many of the annual Safe From The Sun walk/5k events, and witnessed so many patients inspired to fight together against this terrible disease. I cannot wait for the next event!

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Role: General Member of the Public
Rating: 5 stars  

2 people found this review helpful

This is a wonderful organixation, a clearinghouse of information on melanoma. Cathy is a voice for those needing an advocate, at a time when both emotional as well as physical stresses can be overwhelming.

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Rating: 5 stars  

3 people found this review helpful

My mother is a survivor, and she received excellent help and guidance from MIF. I can't thank them enough for the valuable information and caring they have for melanoma patients. Melanoma is a scary diagnosis for a patient as well as their family, and MIF was able to make this journey less scary and more manageable.

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Rating: 1 stars  

3 people found this review helpful

I have been a reader of MIF for several years, as a daughter of a melanoma activist. Recently, when my mother has posted information or questions, the response by Catherine Poole has been negative, inflammatory, and vicious. Recently, the knowledge of this expert and survivor has been deleted. I do not believe that a forum filled with animosity and ignorance could be classified as a 'great non-profit.'

Chandler Rose Morris,
Proud daughter of a melanoma warrior.

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Rating: 5 stars  

3 people found this review helpful

Thank you Catherine Poole and MIF. You are an invaluable resource for all melanoma patients, Stages I through IV. The support provided by the forum is wonderful and the information Catherine and her board provides is the most up to date information a melanoma patient can hope for.

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Rating: 5 stars  

3 people found this review helpful

15 months ago, I was diagnosed with Stage IIIc melanoma. After speaking with various doctors and melanoma specialists, I found MIF and Catherine Poole. What a godsend! This resource has been invaluable to me and my family for advice, support, and guidance. I wish I could give it 10 stars.

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