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Phone: 718-374-3800
192 Lexington Ave
Suite 216

New York
New York 10016
USA
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Mission:
The LGS Foundation is a non-profit organization dedicated to providing information about Lennox-Gastaut Syndrome, a rare and severe form of childhood-onset epilepsy, while raising funds to pursue research, services and programs for LGS patients and their families.
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06/27/11
My son was dx was LGS at age 2 and we went over twenty years not knowing others, it is such a terrible disease and no know ones what your going through, it really is so hard to deal with. but the lgs foundation helped me when i needed them most and helped me meet other families. they also keep me ... more »
06/25/11
The LGS Foundation helped my family cope with the daily challenges of my daughter's disorder. They provided us with pamphlets which I hand out almost every day to get people to better understand what LGS is. They also faciliate communication between parents which is so incredibly important. I found ... more »
06/25/11
LGS member, WF, reached out to us when she heard we had a daughter/s being monitored and evaluated for possible concerns. She asked many questions, listened and then shared her experiences, offered important insight, resources, assistance, and valuable information. I am so thankful she reached out ... more »
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