LATE ONSET TAY-SACHS RESEARCH ANDEDUCATION FOUNDATION

Rating: 5 stars   2 reviews

Issues: Cancer

Location: 4236 Bonavita Dr % Bonnie R Pastor Encino CA 91436 USA

Mission:

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Rating: 5 stars  

The Late Onset Tay-Sachs charity is an underexposed, yet crucial organization focusing on finding treatments, cures and providing information on genetic diseases. It is built on love and pure dedication in the fight against this debilitating disease and those affected. L.O.T.S. organization is working hard to fund research and clinical trials so we can one day (in the near future) get through the blood brain barrier and find ways to regenerate enzymes for all those that suffer from genetic diseases. There are hundreds of different diseases that will benefit from this medical technology. L.O.T.S. puts on an annual fundraiser with speakers, an amazing silent auction, raffle and brunch to raise money to educate our community and support this significant cause. I am proud to be part of such a noble and significant effort and love that 100% of the proceeds go directly to the cause. This research not only effects those suffering presently, but our future generations. It's work is extraordinary.

I've personally experienced the results of this organization in...

My brother suffers from Late Onset Tay-Sachs disease and has been involved in clinical trials, funded through the organization. Friends and family have been educated on the most innovative medical research and many have been tested for genetic diseases.

If I had to make changes to this organization, I would...

Have more fundraisers and extend the board to further promote this organization.

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Review from Guidestar
Rating: 5 stars  

This organization supports a very important disease most people don't know about. I was educated about the disease from the well organized benefits that are held every year. They have very informative speakers and great silent auction items at their events where you can save over 50% the value of the purchase and the money goes directly to research and education of this debilitating disease. The speakers included Dr. Evan Snyder, stem cell specialist, and Dr. Wayne Grody, doctor of genetics, and Dennis Prager, radio personality. I learned there is no treatments even available for those affected and by donating I can save and change someone's life for the better.

I've personally experienced the results of this organization in...

I've personally felt a bond to the loved ones and family of those affected and hope this grass roots campaign grows to change and save lives.

If I had to make changes to this organization, I would...

recommend more evnts in the outreach of such an important cause.

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Review from Guidestar