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KENNEDYS DISEASE ASSOCIATION Overview
The objectives of the Kennedy''s Disease Association are:1. Financially support and promote medical research to find a treatment or cure for Kennedy''s Disease2. Improve awareness of Kennedy''s Disease in the medical community3. Create a support system for those living with Kennedy''s Disease4. Increase public awareness about Kennedy''s Disease and its effects on families5. Share information about Kennedy''s Disease for those who seek it.
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My name is Delores and I live in Saskatoon, Saskatchewan, Canada. My family has quite a few members that have been diagnosed with Kennedy's. My mother comes from a huge family of 12 and many of them were females and carriers. I have 5 known cousins who have the disease but were never diagnosed until...
I found the superbly informative KDA site intially by googling KD 2 years ago finally -after 35 years worsening and reporting to doctors and uncertain neurological clinical specialists - having (UK) NHS DNA test confirmation in 2001, aged 66. After diagnosis a clincal geneticist -who'd never ...
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This is One SUPER Organization and a Non Profit one at that. When I was diagnosed, in 1999 there was NO Information available at all. A very scary spot to be in. I had never heard of anyone with this problem. The KDA web site was a source or real information and even stories of other guys with...
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