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Invisible Disabilities Association

Rating: 4.84 stars   44 reviews 1,520

Address:

P.O. Box 4067 Parker CO 80134 USA

Mission:

Our mission is to encourage, educate and connect people and organizations touched by illness, pain and disability around the globe. Envision with us a world where people living with illness, pain and disability will be Invisible No More!

2015 Top-Rated Nonprofit
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www.InvisibleDisabilities.org

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Reviews for Invisible Disabilities Association

Rating: 5 stars   Featured Review

1 person found this review helpful

I found IDA via disability.gov (Wayne Connell's post) in October 2014, researched them thoroughly, explored their history and advocacy, along with their stories. IDA is THE gem in the disability area. They consistently provide high quality advocacy and support to ALL with invisible disabilities. The organization entered my life and has changed it forever!!

 
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Rating: 5 stars  

I am always strengthened when I read stories or watch videos IDA makes available through social media. I love being a part of an organization that not only touches people, but is seeking to develop new ways to help people struggling with invisible disabilities.

 
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Rating: 5 stars  

1 person found this review helpful

IDA exists to help bring awareness, education and support to millions who live with illness, pain and injury. There are so many out there who feel there is nobody who understands their disabilities and struggles. Countless people who feel abandoned and lonely, now know that they are understood and lifted up by IDA and the connections they have made with others who "get it." I am so thankful for the most dedicated and talented Board Members and Volunteers who understand, believe and care! We have a great IDA Team!

Will you volunteer or donate to this organization beyond what is required of board members?

Definitely

How much of an impact do you think this organization has?

Life-changing

Will you tell others about this organization?

Definitely

When was your last experience with this nonprofit?

2016

 
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Rating: 5 stars  

1 person found this review helpful

This organization not only provides community to those who are going through life suffering invisibly, but it also provides information and support that can be crucial to helping those around people with Invisible Disabilities to better understand what they are going through and how to better do life with them.

 
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Role: Professional with expertise in this field
Rating: 5 stars  

They are an incredible resource for families and individuals. Check out their upcoming brain symposium. It is packed full of world rebound speakers, and for students and vets offered at at a discounted rate with CEUS available. Lacey Berumen

 
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Role: General Member of the Public
Rating: 1 stars  

I have had Peripheral Neuropathy since 2006. I then experienced Thyroid Storm ( Graves Dz) in 2009 causing Hypertension and diabetes. My Neuropathy is in my feet and hands causing me to suffer pain that is only relieved by Gabapentin and Cymbalta. If I forget or delay my meds, I suffer! My balance is affected, my hand grip weakens and I sometime drop things ie: glasses of water. The meds cause me to have brain fog, fatigue, sequencing and short term memory loss. I suffer from blurred vision, leg cramps, burning feet, stabbing pain, and restless legs. I lost my job of 20 years, 2 years ago in Behavioral Health Admissions because I couldn't keep up the fast pace I once easily managed. I was diagnosed with Mycotoxin exposure 10 years ago due to water damage to our home which has been remediated. I have an autoimmune disorder and tested + for Lupis genetics and inability to clear toxins thru my liver like most people. I use Cholestrymine to help bind the toxins to clear thru my colen. I had my gallbladder removed due to acute non alcoholic pancreatitis last May. I suffer from Chronic Fatigue and Fibromyalgia like my mother. It has been a real battle for me. I lost my short term disability a year ago and applied for disability. I am now appealing. It has been a real financial burden for my husband and I. It's nice to know there are others out there, like me suffering these invisible diseases that are coming together to share their experiences and have an advocate voice!

 
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(Nonprofit Staff) wrote:

Merise, We are so sorry to hear of all of the difficulties you experience daily in dealing with chronic illness and pain. As you mentioned, their are many that share similar experiences. You can connect with some of them on our social network, www.InvisibleDisabilitiesCommunity.org. The Invisible Disabilities Association was founded to encourage, educate and connect people such as your self. We want to be your voice to the world, shouting that them that you matter and we hope you envision along with us a world where people living with illness, pain and disability will be Invisible No More! Thank you for your review. We would like the opportunity to address any of your concerns regarding our organization and the reason for a one star review. Wayne Connell Invisible Disabilities Association

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Role: General Member of the Public
Rating: 5 stars  

My invisible disabilities are "epilepsy and "diabetes". I also had "brain surgery" over a decade ago which has eliminated my "short term memory". I follow the "Invisible Disabilities Association" on Facebook because they provide needed: information, communication, support and a forum for people like myself. I am able to share with others, my invisible disabilities, the pain, the struggles and challenges that I deal with in life, each and every day. At the same time, I am listening and learning about others like myself that are fighting the same or similar battles. We are able to learn from each other and give each other hope and helpful advice, but most importantly to know that others walk similar paths as us and they truly care..

 
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Rating: 5 stars  

1 person found this review helpful

I have had fibromayalgia for many years now l never relised it could be seen inviisable disability now l relise why so many people don't relise how ill it can really make a person feel and how much alone you can you can look good but feel you are breaking up iside maureen.rowley@live.co.uk

 
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Rating: 5 stars  

I'm new to the organization, but am excited to help spread the awareness to others living with an invisible disability. I quickly joined the Inspire group and have had some great conversations with others there who understand. This is a wonderful organization with so many great resources and I can't wait to be more involved as an Ambassador!

 
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Rating: 5 stars  

I'm honored and excited to be a part of this organization, and helping IDA to expand its mission of necouraging, educating and connecting those touched by invisible illness or disability.

 
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