My invisible disabilities are "epilepsy and "diabetes". I also had "brain surgery" over a decade ago which has eliminated my "short term memory". I follow the "Invisible Disabilities Association" on Facebook because they provide needed: information, communication, support and a forum for people like myself. I am able to share with others, my invisible disabilities, the pain, the struggles and challenges that I deal with in life, each and every day. At the same time, I am listening and learning about others like myself that are fighting the same or similar battles. We are able to learn from each other and give each other hope and helpful advice, but most importantly to know that others walk similar paths as us and they truly care..
I put my role as a "professional with expertise in this field" instead of "member of the general public" because there are no greater experts on invisible disabilities than those who have them. It is ethically and morally wrong for a company to trademark an identity like this. Should "white" or "black" or "Latino" be trademarked? Should "man" or "woman" be trademarked? Should "American" be trademarked? No, no, and no, and yet, "invisible disabilities" has a trademark. The Association is acting incredibly harmfully towards my community because of this.
I believe that IDA continues to provide awareness and give a voice to individuals who otherwise would be isolated and abandoned. I have been working with the founders for almost two years in an effort to expand this voice into the built environment and provide a shift in design , construction and materials selections that reflect the unseen sensitivities of IDA members .
Becoming aware of invisible disabilities has changed my perspective about many people, and my understanding of them. We have a daughter who suffers from chronic pain, and IDA has increased my awareness of her life and struggles. Of course, this message transfers to many people I know, who always "look good."
How dare the IDA trademark the term "invisible disabilities." I am not a brand, and my identity is NOT to be determined by someone who is not themself a sufferer. You do not speak for us. HOW DARE YOU THINK OTHERWISE.
This organization is only interested in making money, not for advocating change or supporting those with invisible disabilities. They block criticism on their social media, and do not listen to the voices of those who they claim to support. DO NOT TRUST THEM.
This organization is trying to trademark the term " invisible disability" You can't trademark our identities!
Invisible disabilities should not have to include (tm). I am a person. I have invisible disabilities. "Invisibible Disabilities" is not a name to be claimed or made up company title. The term has existed long before this org. Invisibile disability is a part of my identity. My identity, who I am, and my disabilities should not be trademarked. Shame on this organization. It clearly has no true understanding of disabilities or moral ethics.
I have several invisible illnesses, and you have no right trademarking them - you have to be pretty horrible to do such a thing.
The Invisible Disabilities Association does not connect people and organizations - rather the IDA silences people and organizations. The IDA seeks to build a wall around Invisible Disability (tm) - and the king at the center is Wayne Connell. Watch out, if you don't fit into Wayne's brand of Invisible Disability - then this organization may try to silence you.