INTERNATIONAL ASSOCIATION FOR HOSPICE AND PALLIATIVE CARE INC

Rating: 4.7 stars   60 reviews

Issues: Health

Location: 5535 Memorial Dr Ste F - Pmb 509 Houston TX 77007 USA

Mission: Millions of patients around the world are diagnosed with life threatening conditions or advanced stages of diseases such as cancer. The vast majority of them do not have access to care, including pain relief. The mission of IAHPC is to collaborate and work to improve the quality of life of patients with advanced life-threatening conditions and their families, by advancing hospice and palliative care programs, education, research, and favorable policies around the world.We achieve this by:*Facilitating and providing palliative care education and training opportunities for care providers *Acting as an information resource for professionals, health care providers and policy makers *Developing collaborative strategies for hospice and palliative care providers, organizations, institutions and individuals
Results: Through our website we provide a lot of support and information to help those who are starting to develop hospices and palliative care programs, enabling them with the tools and information they need.
Target demographics: Health care workers who care for patients who are diagnosed with life limiting illnesses.

2010 Top-Rated Nonprofit
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Community Reviews

Rating: 5 stars  

6 people found this review helpful

When my husband was diagnosed with lung cancer, we were told by the medical staff that he was incurable and could not offer any treatment and referred him to hospicecare. We were devastated and thought this was denying him care. I found IAHPC through the web, called and talked to a staff member who listened to me, clarified what hospice care is, gave us information about hospices in my area and provided ongoing support. It seem very little, but it meant the world to us.

I've personally experienced the results of this organization in...

Thanks to IAHPC my husband received hospice care and the family was able to spend time with him.

If I had to make changes to this organization, I would...

None

What I've enjoyed the most about my experience with this nonprofit is...

Their willingness to help and to spend time hearing about our concerns and needs.

The kinds of staff and volunteers that I met were...

Warm, reassuring and helpful.

If this organization had 10 million bucks, it could...

Help more people and families.

Ways to make it better...

I had known about hospice care earlier.

In my opinion, the biggest challenges facing this organization are...

One thing I'd also say is that...

How frequently have you been involved with the organization?

About every six months

When was your last experience with this nonprofit?

2009-5-01

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Role: Professional with expertise in this field
Rating: 5 stars  

10 people found this review helpful

I cannot imagine that there is a nonprofit anywhere in the world whose work is more important than that of the International Association for Hospice and Palliative Care (IAHPC). Under the ingenious, tireless leadership of Liliana de Lima, IAHPC is reponsible for bringing pain relief and comfort to dying patients in developing countries around the world. The IAHPC is the leading organization in the world promoting palliative care in poor countries. They have made it possible for countless clinicians from poor countries to gain the knowledge and skill necessary to treat distressing symptoms in dying patients. In addition, the IAHPC organized and implemented a rigorous project that resulted in a list of essential medicines for palliative care that has set the standard for palliative care around the world. IAHPC also published the first and still the most important handbook on palliative care for the poor. Finally, the IAHPC website is the single best source of palliative care training materials, guidelines, and other documents in the world. Without the IAHPC, the field of palliative medicine would not be nearly as advanced as it is, and tens of thousands of poor people with life-threatening illnesses would not have had their suffering relieved. I strongly recommend the IAHPC for prestigious health award.

I've personally experienced the results of this organization in...

Vietnam and in working with emerging leaders in palliative care from around the world.

How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?

2010-6-01

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Role: Professional with expertise in this field
Rating: 5 stars  

7 people found this review helpful

I was invited by IAHPC to participate in a process to develop a list of Essential Medicines in Palliative Care. The resulting list includes all those medications that are needed to treat the most common symptoms in patients with life limiting conditions and diseases. I was able to participate in an online survey and then in a face to face meeting organized by IAHPC where the List of Essential Medicines was finalized and approved. This list has served me and my country well: it was used as the model to develop the medicines policies for the national palliative care program.

I've personally experienced the results of this organization in...

Improving access to medications and setting standards that are applicable in all regions of the world, regardless of their economic development.

What I've enjoyed the most about my experience with this nonprofit is...

Participating in their projects to develop products that are applicable throughout the world. This includes the development of a list of Essential Medicines in Palliative Care and more recently, the list of Essential Practices in Palliative Care.

The kinds of staff and volunteers that I met were...

Wonderful, professional and very efficient.

If this organization had 10 million bucks, it could...

Help thousands of palliative care workers and health care providers.

How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?

2008-7-01

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Rating: 5 stars  

9 people found this review helpful

IAHPC is a key partner in the international advocacy and education process to build global palliative care capacity. As a participant in this process, I have found the services offered by IAHPC, partcularly the International Travel Scholarships to be invaluable to bring members together; the resouces at the IAHPC website to be easily accessible and very useful to many of the people I am working with; and now the access to palliative care journals to be a key resouces, as physicians and nurses in most countries do not have easy access to literature or educational resources.I hope IAHPC will dramatically increase its reach and membership in the coming year.

I've personally experienced the results of this organization in...

Access to educational resources; travel grants; access to palliative care journals. The Executive Director is a very insightful leader; and works hard to invite and integrate everyone's opinion regularly.

If I had to make changes to this organization, I would...

IAHPC is in the process of making the changes I am hoping for...

What I've enjoyed the most about my experience with this nonprofit is...

Openness to discussion; drive to reach out globally

The kinds of staff and volunteers that I met were...

Very helpful; creative; strong consensus-builders; leaders to make next steps happen

If this organization had 10 million bucks, it could...

Reach many more palliative care teams worldwide

Ways to make it better...

Many more members would be recruited and more participatory in IAHPC activities...

In my opinion, the biggest challenges facing this organization are...

Resources... many ideas... need resources to help develop these in a timely manner.

One thing I'd also say is that...

An honor and a privilege to be a member...

How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?

2010-6-01

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Rating: 4 stars  

10 people found this review helpful

I am originally from Eastern Europe and when I saw how IAHPC was supporting nurses and doctors from Russia I decided to donate. I am not a health care professional but I enjoy reading their newsletter and learning about their efforts in many countries of the world.

I've personally experienced the results of this organization in...

I read their reports and newsletters and to learn about the extraordinary things they do.

What I've enjoyed the most about my experience with this nonprofit is...

learning how they help the nurses and physicians in Eastern Europe so that they can attend seminars, sessions and congresses.

If this organization had 10 million bucks, it could...

Help more health care professionals get the training they need.

How frequently have you been involved with the organization?

About once a year

When was your last experience with this nonprofit?

2010-3-01

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Role: Professional with expertise in this field
Rating: 4 stars  

10 people found this review helpful

When I returned to my native Jamaica in 2002, after spending 12 years in the UK, working in Oncology and Palliative Medicine, I found that I was pretty much alone in promoting palliative care in Jamaica at the time. I then discovered the IAHPC which seemed to represent the "little people". This organization provides support, information, education and scholarships for health professionals principally from the developing world. I was a lucky recipient of such a scholarship in November last year when the award enabled me to attend an important educational meeting in Houston. The IAHPC is a champion for those of us in the developing world trying to advance hospice and palliative care in challenging circumstances.

I've personally experienced the results of this organization in...

Receiving a scholarship to go an educational meeting that I could not have attended without their support.

How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?

2010-6-01

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Role: Professional with expertise in this field
Rating: 5 stars  

5 people found this review helpful

We started with the Palliative Care Program 5 years ago, when nobody in our Institution had heart about Palliative Care before. At the beginning we hadn´t patients and therefore it was really difficult to get financial resources to support the Program, and at that moment the International Association of Hospice and Palliative Care (IAHPC) played a key role giving as the possibility to receive 3 years of financial support as a Faculty Development Program. At the beginning we were only one physician and one psychologist. Today we are four physicians, three nurses and two psychologist, and we work together with kinesiologist, members of the pastoral and of the psyquiatry department. But IAHPC is not only a source of funding, it’s also a great source of inspiration and education for all the professionals who are working in the palliative care field around the world. Personally, the opportunity to have been supported to attend international palliative care meetings and to know Liliana de Lima and Eduardo Bruera, was fundamental to believe in the spirit of Palliative Care represented by the IAHPC, a discipline which work to improve the quality of life of patients with advanced life-threatening conditions and their families. In our world it’s not easy to find Institution really moved by such altruistic motivations.

I've personally experienced the results of this organization in...

different areas, financial support of travelling scholarship, financial support of an academic program, specialized books and journals source, specialized meeting organization and permanent source of actualized information.

What I've enjoyed the most about my experience with this nonprofit is...

the big and permanent support of iniciatives oriented to develpo Palliative Care around the world

The kinds of staff and volunteers that I met were...

very enthusiastic people

If this organization had 10 million bucks, it could...

use it properly

How frequently have you been involved with the organization?

About every six months

When was your last experience with this nonprofit?

2010-6-01

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Role: Professional with expertise in this field
Rating: 5 stars  

4 people found this review helpful

IAHPC is a very important organization to provide knowledge and practical help of palliative care. I've received the journals from it, and the articles in them can tell me the progression on palliative care. It also give me some oppotunities to get the scholarship to go abroad to enter the meetings on pallaiative care.

I've personally experienced the results of this organization in...

By e-mail through their letters I get to know what is new in field of palliative care.

How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?

2010-1-01

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Rating: 5 stars  

5 people found this review helpful

Like many others, I new IAHPC receiving the benefits it offers to the palliative care community - I used the word "benefit", but the right word is "opportunity": IAHPC gave many people - including me - the opportunity to take a look at the modern world of palliative care. I had the opportunity to become a board member, to know the institution from the inside and to participate in some of its projects. Currently it is the place where I join people willing to move forward - and this is my privilege.

I've personally experienced the results of this organization in...

In many projects with great impact in the implementation of palliative care and consequently in the comfort of very ill patients: education of health professionals, improving the access to essential medications in developing countries, etc.

How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?

2010-6-01

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Rating: 5 stars  

4 people found this review helpful

I have been associated with IAHPC since early days of my career in palliative care. The organization has helped me in many ways to enhance my activities in the field. It is one of the best websites to access any information on palliative care. The newsletter is the highlight and I look forward to reading the each publication. I have also seen many of my other friends in developing countries getting hugely benefitted by various scholarships they offer and in that sense IAHPC is an organization which is truly global with an access to all.

I've personally experienced the results of this organization in...

expansion of my palliative care activites and many others in my country in the field of palliative care.

How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?

2010-6-01

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