Huntington's Disease Society of America, Inc.
Rating: 4.82 stars 112 112 reviews 4,479
505 Eighth Avenue Suite 902 New York NY 10018 USA
The Huntington’s Disease Society of America is the largest 501(c)(3) non-profit volunteer organization dedicated to improving the lives of everyone affected by Huntington’s Disease. The Society works tirelessly to provide the family services, education, advocacy and research to provide help for today, hope for tomorrow to the more than 30,000 people diagnosed with HD and the 200,000 at-risk in the United States.
everyone affected by HD and their families.
Geographic areas served:
all of the United Stated
Research - supplies research as advised by its medical & scientific affairs committee. The research projects are involved in finding cures and treatments for huntington's disease.
patient and family services - provides counseling and referral services to patients with huntington's disease and their families.
chapter development - provides workshops, seminars, and symposiums on huntington's disease through a network of chapter affiliates and branches throughout the united states.
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Reviews for Huntington's Disease Society of America, Inc.
I have attended education days in my state and i am so grateful for HDSA bringing awareness to people in my community. I have been able to connect with other family members.
I have called HDSA several times and they are always helpful, courteous and compassionate.
Thank you for all that you do for our family, we appreciate all of your help.
HDSA offers families a place where they can find the most up to date information on HD. Often they are the first place a person with HD calls when they learn that HD is in their family. HDSA advocates for the HD community every day.
There is so much incredibly valuable information on the HDSA.org website and on HDSA's social media pages. The HDSA YouTube Channel has everything families need from research news and caregiver tips. HDSA also coordinates excellent community events and support groups from coast to coast.
This is a great non profit fighting for a worthy cause!
I have called the help line to receive information and they have been very knowledgeable. Thank you for all of your help.
This nonprofit needs support. This disease is unknown to most and deserves our attention. These families have generations of unfortunate and almost unimaginable discrimination. It is one of the worst mental and physical disabilities known to man. These families are struggling and need our financial help. Because the families are so mentally affected they are unable to ask for help. PLEASE consider this charity for donations. Google it for more info.
3 people found this review helpful
Huntington's Disease is by far the cruelest disease to date. Having said this, having the support of the HDSA is crucial for families on so many levels. THis agency has helped with setting up Doctors appointments, it aids in funding Research , offers support groups in states and cities around the country and gives families HOPE which is all we have right now. HOPE for a future with no Huntington's and a chance for those children at risk to breathe and look forward to their future. I have lost my husband to HD and my 21 year son is symptomatic. Without HDSA I would be lost. Definately the #1 Non Profit around.
2 people found this review helpful
A family with 2 aunts and my mother all with HD. Could no ask for a better organization!