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Nonprofit Overview

Causes: Birth Defects & Genetic Diseases, Health

Mission: Improve quality of life for people with bleeding disorders.

Programs: Patient services-sponsored a summer camp for children with bleeding disorders;provided limited financial support to several needy families.

public health education-conducted education seminars and veinipuncture clinics; publish monthly educational newsletter; maintain library related bleeding disorder/hiv/aids.

research

Community Stories

1 Story from Volunteers, Donors & Supporters

Donor

Rating: 5

The Hemophilia Association of the Capital Area (HACA) serves individuals in the Washington, DC Metro area - to include all of DC, Northern Virginia and two counties in Maryland. I have been involved with the organization for the past three months and am pleased to report that this is a worthy charity. The organization is staffed by two part time individuals and housed in an office in Fairfax. During this time I have learned much about hemophilia and other bleeding disorders. For example, did you know that medications for those with hemophilia while covered by insurance still cost families between $150,000 and $600,000 per year - depending on the severity of the condition. Can you imagine having to pay those sorts of costs to survive? (Lapse in insurance coverage is obviously not an option nor is a lapse in medication.) I also understand it is a very painful disease and left untreated can be debilitating. This is a very worthy charity as are all charities. But -- $1 given to this organization goes much further and has a much more direct impact on our community than that same $1 given to one of the mega charities.

Review from Guidestar