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Friedreichs Ataxia Research Alliance Fara Overview
FARA's mission is to slow, stop and reverse the damage done by this disorder. FARA promotes scientific research through grants, workshops and the collaborative exchange of information within the scientific community.
Serves as a patient advocacy group to educate the public, the Congress, and other government officials regarding Friedreich's ataxia and the importance of funding biomedical research; works cooperatively with government entities, especially the Congress and the National Institutes of Health, as well as other organizations that support scientific research aimed at treatments for this disorder; rallies patients, patient families, scientific investigators, health care providers, and others to be advocates for scientific advancements that will lead to treatments and a cure.
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My daughter was diagnosed when she was very very young. It was the most devasting news in the world. When I found out about FARA, I was thrilled and delighted that someone was reaching out to the scientific community at large, and also that we, as parents, would be able to make a difference ...
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When my son was born in 1996, it was the most awe-inspiring moment of my life. Holding this little boy, WOW, really changed my life in ways I had yet to discover. His birth and developments were normal; however, his balance and falling were becoming more pronounced with each passing day. Long ...
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