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Nonprofit Overview

Causes: Epilepsy, Health

Mission: "Dedicated to improving the quality of life for persons affected by epilepsy."

Results: We have our own building and clinic that was donated to us saving money that would go to rent going to services! We have a new EEG laboratory saving costs doing them ourselves. We have also created a worldwide online support community and epilepsy education/information site - www.EpilepsyU.com reaching close to a million people around the globe each month. Our newest venture is into epilepsy awareness and social enterprise to support our programs and services, an online store - www.EpilepsyStore.com

Target demographics: Individuals, families and children affected by epilepsy/seizures. Service Area: Central Florida - Orange, Seminole, Osceola nd Brevard counties.

Direct beneficiaries per year: EACF averages nearly 500 active clients per month and reaches millions more with epilepsy educational programs.

Geographic areas served: With offices in Orlando and Melbourne Florida we serve Orange, Seminole, Osceola and Brevard Counties.

Programs: Epilepsy Clinics Epilepsy Diagnostics Case Management Support Groups Epilepsy Prevention and Education Programs Shaken Baby Education and Prevention Programs www.EpilepsyU.com - a worldwide epilepsy news and support community, and, www.EpilepsyStore .com for epilepsy awareness products.

Community Stories

61 Stories from Volunteers, Donors & Supporters

Professional with expertise in this field

Rating: 5

When you are working with children with epilepsy, it is heart breaking. It is at times overwhelming for the parents and the children. The Epilepsy Association of Central Florida has always been the number one resource for these families. With support groups, fun events galore, walks and medical help, it is a God send! Thanks to Chuck and all the staff for being there - always!
Kay ARNP

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Professional with expertise in this field

Rating: 5

This organization is truly dedicated to epilepsy patients and their families. Over the years, they have helped with medications, office visits, EEG's and blood tests. Their fund raisers are outstanding and the proceeds go directly to assisting these patients. Thanks for all your dedication!!

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Professional with expertise in this field

Rating: 5

I have worked with numerous nonprofit organizations and Executive Director, Chuck Carmen, does a phenomenal job. He is extremely caring and dedicated to providing the much needed services to the community. This organization is top notch and wish nothing but the best for them.

Client Served

Rating: 5

I think everyone needs to know how terrific Epilepsy Association of Central Florida is. I have been working with them for almost 3 years now, and the people there are just terrific. Their executive Director, Chuck Carmen is amazing and will do anything in his power to help find a cure for Epilepsy. I have been working directly with Chuck, and he has helped us help people with Epilepsy. Chuck found my company, QR LifeSupport, a few years ago, when we had just launched, and all he thought was how great would we be to help people with Epilepsy give them peace of mind and a better quality of life. Chuck and everyone at EACF, always put the Epilepsy community first with everything they do, and it shows. I am thankful that I not only work with EACF on a daily basis, but I have learned lot just from working with them. I support them 100% with everything they do, and wish them the best everyday that they find a cure for Epilepsy.

Donor

Rating: 5

I could only imagine what could be done by most nonprofits if they were fortunate enough to be run by someone as skilled as Chuck Carmen. After 15 years of personal experience with this organization it still amazes me how to see how caring and dedicated Chuck is to provided much needed services to the Central Florida community.

Professional with expertise in this field

Rating: 5

The EACF is a first-rate organization. Following the skilled leadership of it's executive director, Chuck Carmen, EACF is a light of hope to epilepsy patients all over Central Florida. More than that, it's innovative website, www.EpilepsyU.com is a valuable resource to other Epilepsy Associations and epilepsy patients across the United States, providing information, education, and assistance at the touch of a button. As the father of an epilepsy patient, and as an epilepsy service provider, I have seen with my own eyes the care and compassion that resides within all who work for and with the Epilepsy Association of Central Florida.

Advisor

Rating: 5

I have had the good fortune of working with the team from Epilepsy Association of Central Florida for more than two years, and can't say enough good things about them! They are a group of caring, kind, and compassionate people, who are focused on doing well AND doing good to help improve the lives of those who suffer from Epilepsy. With strong leadership, staff, board, volunteers, donors, supporters, and numerous other stakeholders, this organization has accomplished so much, not the least of which is creating their online marketplace, EpilepsyStore.com, to sell unique merchandise branded with a proprietary "purple "e" ribbon" that helps raise epilepsy awareness and supports the mission of Epilepsy Association of Central Florida. Hats off to this AMAZING organization!

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Advisor

Rating: 5

The Epilepsy Association of Central Florida is an amazing organization that truly makes its mission the focal point of everything it does. I have had the good fortune of getting to know the leadership, board, staff, and volunteers from this nonprofit, and all of them have been passionate about doing whatever they can to help improve the quality of life for people who suffer from epilepsy. I have been most impressed with the "can do" culture of this organization that leverages its smart thinking and sound planning to take quick action that makes a difference in the lives of others. I have worked with many nonprofit organizations throughout Florida over the course of many years, and I can honestly say that Epilepsy Association of Central Florida is one of my favorites!

1 Saundra

Board Member

Rating: 5

The Epilepsy Association of Central Florida has been helping families impacted by epilepsy for over 50 years. The association has only had two executive directors, founder Merle Evanchyck and current director, Charles (Chuck) Carmen. The dedication of the directors and the loyalty of board members and supporters, demonstrates the confidence people have in the Epilepsy Association of Central Florida. The mission has gone world wide through Epilepsy U, an online information source available to anyone needing information. This organization addresses needs at the source, the patients and families that need help and support. Saundra Gray

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3

Volunteer

Rating: 5

This organization is celebrating 50 years of serving clients and families impacted by epilepsy. It started in Merle Evanchyck's kitchen and has now expanded to world wide influence. Merle has celebrated over 90 years and is so pleased with what she started. The world wide influence is through EpilepsyU, an information site and help platform for professionals, patients, families of patients and just the public at large who wish to know more about the disorder.
I have been involved for over 50 years, since I was searching for help when our 15 month old daughter had her first seizure. Little was available then in the way of information or support and the organization helped our family through those rough years. I serve on the board of directors now as a group of dedicated professionals pilot the organization into our next phase with the engine of the internet helping to spread information and hope to the many patients and their families struggle with a difficult and challenging disorder.

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Professional with expertise in this field

Rating: 5

The Epilepsy Association of Central Florida is consistently providing the highest quality of service for the Community. They are innovative, creative, and understand the needs of people with epilepsy and the families and caregivers that serve them. Their Leadership Team is outstanding and they are not afraid to take calculated risk. The organization goes above and beyond for those they serve. They have a local, regional, national, and international presence.

1 Amy_266

Volunteer

Rating: 5

I volunteer for this organization doing EEGs for them. I do this because it allows optimal treatment for patients who would not receive this care. It helps to decrease hospital visits. It also helps to lead more productive lives for the clients because they can receive the proper medical care for Epilepsy.

Professional with expertise in this field

Rating: 5

Outstanding service to an underserved, needy population in Central Florida. Have a long history of helping the community

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Professional with expertise in this field

Rating: 5

EACF has been an invaluable service to the Central Florida Epilepsy community since its inception. Wonderful staff, wonderful organization. The care for individuals and breadth of knowledge in irreplaceable.