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Epilepsy Association of Central Florida Inc

Rating: 4.9 stars   61 reviews 3,805

Address:

109 North Kirkman Road Orlando FL 32811 USA

Mission:

"Dedicated to improving the quality of life for persons affected by epilepsy."

Results:

We have our own building and clinic that was donated to us saving money that would go to rent going to services! We have a new EEG laboratory saving costs doing them ourselves. We have also created a worldwide online support community and epilepsy education/information site - www.EpilepsyU.com reaching close to a million people around the globe each month. Our newest venture is into epilepsy awareness and social enterprise to support our programs and services, an online store - www.EpilepsyStore.com

Target demographics:

Individuals, families and children affected by epilepsy/seizures. Service Area: Central Florida - Orange, Seminole, Osceola nd Brevard counties.

Direct beneficiaries per year:

EACF averages nearly 500 active clients per month and reaches millions more with epilepsy educational programs.

Geographic areas served:

With offices in Orlando and Melbourne Florida we serve Orange, Seminole, Osceola and Brevard Counties.

Programs:

Epilepsy Clinics Epilepsy Diagnostics Case Management Support Groups Epilepsy Prevention and Education Programs Shaken Baby Education and Prevention Programs www.EpilepsyU.com - a worldwide epilepsy news and support community, and, www.EpilepsyStore .com for epilepsy awareness products.

2016 Top-Rated Nonprofit
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More Info

407-422-1416
http://epilepsyassociation.com

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Reviews for Epilepsy Association of Central Florida Inc

Role: Professional with expertise in this field
Rating: 5 stars  

When you are working with children with epilepsy, it is heart breaking. It is at times overwhelming for the parents and the children. The Epilepsy Association of Central Florida has always been the number one resource for these families. With support groups, fun events galore, walks and medical help, it is a God send! Thanks to Chuck and all the staff for being there - always!
Kay ARNP

 
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1 previous review
Rating: 5 stars  

This organization is truly dedicated to epilepsy patients and their families. Over the years, they have helped with medications, office visits, EEG's and blood tests. Their fund raisers are outstanding and the proceeds go directly to assisting these patients. Thanks for all your dedication!!

 
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1 previous review
Rating: 5 stars  

The medical care associated with this organization is top notch. EEG's are done in the facility, referrals are made to excellent physicians in the community and the best medical advice is available. I thank them for their involvement with all the epilepsy patients, the schools and the community.

I've personally experienced the results of this organization in...

their fund raising walk, it is exceptional.

If I had to make changes to this organization, I would...

do whatever I could to help expand their services to all in need.

 
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Role: Professional with expertise in this field
Rating: 5 stars  

I have worked with numerous nonprofit organizations and Executive Director, Chuck Carmen, does a phenomenal job. He is extremely caring and dedicated to providing the much needed services to the community. This organization is top notch and wish nothing but the best for them.

 
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Rating: 5 stars  

I think everyone needs to know how terrific Epilepsy Association of Central Florida is. I have been working with them for almost 3 years now, and the people there are just terrific. Their executive Director, Chuck Carmen is amazing and will do anything in his power to help find a cure for Epilepsy. I have been working directly with Chuck, and he has helped us help people with Epilepsy. Chuck found my company, QR LifeSupport, a few years ago, when we had just launched, and all he thought was how great would we be to help people with Epilepsy give them peace of mind and a better quality of life. Chuck and everyone at EACF, always put the Epilepsy community first with everything they do, and it shows. I am thankful that I not only work with EACF on a daily basis, but I have learned lot just from working with them. I support them 100% with everything they do, and wish them the best everyday that they find a cure for Epilepsy.

 
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Rating: 5 stars  

I could only imagine what could be done by most nonprofits if they were fortunate enough to be run by someone as skilled as Chuck Carmen. After 15 years of personal experience with this organization it still amazes me how to see how caring and dedicated Chuck is to provided much needed services to the Central Florida community.

 
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Role: Professional with expertise in this field
Rating: 5 stars  

The EACF is a first-rate organization. Following the skilled leadership of it's executive director, Chuck Carmen, EACF is a light of hope to epilepsy patients all over Central Florida. More than that, it's innovative website, www.EpilepsyU.com is a valuable resource to other Epilepsy Associations and epilepsy patients across the United States, providing information, education, and assistance at the touch of a button. As the father of an epilepsy patient, and as an epilepsy service provider, I have seen with my own eyes the care and compassion that resides within all who work for and with the Epilepsy Association of Central Florida.

 
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Rating: 5 stars  

I have had the good fortune of working with the team from Epilepsy Association of Central Florida for more than two years, and can't say enough good things about them! They are a group of caring, kind, and compassionate people, who are focused on doing well AND doing good to help improve the lives of those who suffer from Epilepsy. With strong leadership, staff, board, volunteers, donors, supporters, and numerous other stakeholders, this organization has accomplished so much, not the least of which is creating their online marketplace, EpilepsyStore.com, to sell unique merchandise branded with a proprietary "purple "e" ribbon" that helps raise epilepsy awareness and supports the mission of Epilepsy Association of Central Florida. Hats off to this AMAZING organization!

 
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1 previous review
Rating: 5 stars  

The Epilepsy Association of Central Florida is an amazing organization that truly makes its mission the focal point of everything it does. I have had the good fortune of getting to know the leadership, board, staff, and volunteers from this nonprofit, and all of them have been passionate about doing whatever they can to help improve the quality of life for people who suffer from epilepsy. I have been most impressed with the "can do" culture of this organization that leverages its smart thinking and sound planning to take quick action that makes a difference in the lives of others. I have worked with many nonprofit organizations throughout Florida over the course of many years, and I can honestly say that Epilepsy Association of Central Florida is one of my favorites!

 
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Rating: 5 stars  

1 person found this review helpful

The Epilepsy Association of Central Florida has been helping families impacted by epilepsy for over 50 years. The association has only had two executive directors, founder Merle Evanchyck and current director, Charles (Chuck) Carmen. The dedication of the directors and the loyalty of board members and supporters, demonstrates the confidence people have in the Epilepsy Association of Central Florida. The mission has gone world wide through Epilepsy U, an online information source available to anyone needing information. This organization addresses needs at the source, the patients and families that need help and support. Saundra Gray

 
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1 previous review
Rating: 5 stars  

3 people found this review helpful

This organization is celebrating 50 years of serving clients and families impacted by epilepsy. It started in Merle Evanchyck's kitchen and has now expanded to world wide influence. Merle has celebrated over 90 years and is so pleased with what she started. The world wide influence is through EpilepsyU, an information site and help platform for professionals, patients, families of patients and just the public at large who wish to know more about the disorder.
I have been involved for over 50 years, since I was searching for help when our 15 month old daughter had her first seizure. Little was available then in the way of information or support and the organization helped our family through those rough years. I serve on the board of directors now as a group of dedicated professionals pilot the organization into our next phase with the engine of the internet helping to spread information and hope to the many patients and their families struggle with a difficult and challenging disorder.

If I had to make changes to this organization, I would...

Continue on the course they are on with more funding possibilities.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Some

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2013

 
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1 previous review
Rating: 5 stars  

2 people found this review helpful

The Epilepsy Association of Central Florida has been helping patients and educating the public for more than 50 years. Last year we celebrated the 90th birthday of our founder Merle Evanchyck and our 50th year in existence. We are going strong and so is Merle.

Our organization is supported by so many dedicated people including the Auto Dealers of Central Florida who are again sponsoring a golf tournament for our benefit. Leonard Williams has been a stalwart supporter for many years through the Wayne Densch Foundation. We are honored by the support of such wonderful and generous people.

If I had to make changes to this organization, I would...

I can see no reason to make changes to something working so well.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

A lot

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2013

 
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1 previous review
Rating: 5 stars  

1 person found this review helpful

I have been involved with this organization from the beginning. In the early 60's there was no place to turn for support and little information available. That is when I met Merle Evanchyck who founded the Central Florida movement. It has progressed from her kitchen table to a responsible, dynamic organization that, thanks to our Executive Director, Chuck Carmen, has started far reaching progressive ideas like Epilepsy U, an online place for information and interaction. He also engineered the making of the video,
"Shaken Baby" to educate how dangerous that practice is. With better education we have been able to shed light on this far too common disorder, encourage research, early diagnosis, better treatment, and of course understanding. We have been involved as a family with personal experience but our interest goes beyond personal to understanding that this is a problem that needs to be solved, especially with so many wounded warriors coming home with traumatic brain injury. Peace, Saundra Gray

Will you volunteer or donate to this organization beyond what is required of board members?

Definitely

How much of an impact do you think this organization has?

Life-changing

Will you tell others about this organization?

Definitely

When was your last experience with this nonprofit?

2013

 
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1 previous review
Rating: 5 stars  

1 person found this review helpful

We have been involved with the Epilepsy Association of Central Florida since the inception. There was no place to turn for advice, support and understanding when our daughter was diagnosed in 1960. Much has changed since then and information is available, but the person to person support is so important for the patient and family when a diagnosis of epilepsy is delivered.
Epilepsy is a complex problem affecting all aspects of life. EACF is a lifeline for many patients and their loved ones. The organization helps save taxpayer funds by managing care, giving patients an opportunity to find the best possible solutions to their disorder.
We look forward to the day a cure is found but until then we applaud the Epilepsy Association of Central Florida for their fine work.

I've personally experienced the results of this organization in...

I have seen many patients helped with their challenges and families given understanding and hope.

If I had to make changes to this organization, I would...

If I could make changes I would expand public knowledge of epilepsy, how common it is, and how more research is needed to find answers to all seizure disorders. Many of our service members will suffer from seizures due to head trauma in the battlefield.

 
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Role: Professional with expertise in this field
Rating: 5 stars  

The Epilepsy Association of Central Florida is consistently providing the highest quality of service for the Community. They are innovative, creative, and understand the needs of people with epilepsy and the families and caregivers that serve them. Their Leadership Team is outstanding and they are not afraid to take calculated risk. The organization goes above and beyond for those they serve. They have a local, regional, national, and international presence.

 
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Rating: 5 stars  

1 person found this review helpful

I volunteer for this organization doing EEGs for them. I do this because it allows optimal treatment for patients who would not receive this care. It helps to decrease hospital visits. It also helps to lead more productive lives for the clients because they can receive the proper medical care for Epilepsy.

 
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Role: Professional with expertise in this field
Rating: 5 stars  

Outstanding service to an underserved, needy population in Central Florida. Have a long history of helping the community

 
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1 previous review
Rating: 5 stars  

EACF has been an invaluable service to the Central Florida Epilepsy community since its inception. Wonderful staff, wonderful organization. The care for individuals and breadth of knowledge in irreplaceable.

 
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