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PO Box 1382
Mays Landing
New Jersey 08330
USA
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2013 Top-rated nonprofits and charities

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Mission:
Ehler-Danlos Syndrome (EDS) is a genetic connective tissue (collagen) disorder that causes debilitating pain, joint dislocations, arterial/organ ruptures/dissections and has resulted in numerous deaths from a lack of knowledge.

EDS TODAY was born in 2000, out of dire necessity to help those with EDS acquire the latest, most up-to-date medical information and contacts in one resource guide, a newsletter. Which is written for, by and about people with EDS, each page is filled with many voices from around the world, sharing their experience, advice, and support for one another. In addition to this newsletter, we have worked tirelessly over the last ten years on outreach, advocacy, support and helping to raise funds for ongoing scientific EDS research. We are fully aware that the ONLY way to improve the future and the quality of life for the EDS patient is through RESEARCH. We are committed to this goal!

EDS Today is proud to say that we continue to be staffed 100% by dedicated volunteers.
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10/26/13
Eds today is a great organization that has help me and my family have a better understanding of eds... more »
10/21/13
EDS Today is a wonderful organization that helps raise awareness and information about Ehlers-Danlos Syndrome. The one thing that sets EDS Today apart from other charities is its human connection. They are there with you through it all and truly "walk" with you.....and that makes all the ... more »
10/21/13
Wonderful support symptom and knowledge base. Very useful organization for those families directly and not directly effected from EDS... more »
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