Dysautonomia Foundation, Inc.
Rating: 5 stars 1 1 review 166
315 W 39th St., #701 New York NY 10018 USA
The Dysautonomia Foundation funds and operates medical treatment, research, social services and public awareness programs for the benefit of people afflicted with familial dysautonomia (FD).
Treatment and Research Centers at NYU Medical Center (USA) and Hadassah Hospital(Israel)
Filter Reviews by Role
Promote This Nonprofit
GreatNonprofits badges allow you to raise awareness of your favorite nonprofits on your own web sites!
Reviews for Dysautonomia Foundation, Inc.
Familial Dysautonomia is a rare genetic disorder that causes severe problems to the gastrointestinal, cardiac, pulmonary, orthopedic, renal, and ophthalmological systems. The Foundation has funded research and treatment leading to the identification of the gene, possible gene therapies, and extended life expectancy as well as improved quality of life for those afflicted. In its short history, the Dysautonomia Foundation has made an incredible difference for these patients and their families. In addition, it raises awareness among the general population to identify carriers before they have children. My niece has this disorder and is now 23 years old, when her life expectancy at birth was only 10 years, thanks to the work of this non-profit and its devoted medical personnel, volunteers, and donors. My family is now able to be tested to determine if they are carriers, thanks to the work of the foundation. In addition, the foundation has made it possible for FD patients to be designated as developmentally disabled, giving them access to educational and social services. Even though this is a rare disorder, the scientific work of the foundation has applicability to understanding and helping other disorders and disabilities.
Was your donation impactful?
How likely is it that you would recommend that a friend donate to this group?
How likely are you to donate to this group again?
When was your last experience with this nonprofit?
I'm a volunteer at SHARE, and I have been moved and amazed by every day I've been there. I have witnessed many a call and in-person... more »
My battle has been long, and overwhelming at times. I thought I was the only one. Lonely and depressed, I searched the web for... more »
Anonymous Reviewer wrote:
This nonprofit needs support. This disease is unknown to most and deserves our attention. These families have generations of... more »
For over 35 years DES Action USA has been the consistent and reliable source of health information and research findings for those... more »
I hope those comprising CRI are interested in 2lbs of stevia curing my uncle's 6 in transition phase to cancer breast tumors.... more »