CYSTIC FIBROSIS RESEARCH INC Overview
Programs: We fund CF research in the San Francisco Bay region currently supporting 4 post-doctoral fellows and support 3 CF research projects South Carolina, Alabama and California. We host an annual educational conference, attracting international speakers and participants from across the country. We issue three newsletters per year, free of charge to over 14,000 constituents. We also hold an annual day retreat for the CF community. We provide on-going support groups for teens and adults with CF and for parents and caregivers of children with CF. We oversee and information based website which is accessed by over 5,500 people each month. A Counseling program has recently been launched for the CF community. We provide direct information and referral to all in our community.
What sets CFRI apart from other CF organizations is our commitment to provide educational and personal support to those living with cystic fibrosis and their families. It has been shown that informed and knowledgeable patients maintain healthier lives. We believe that the information and assistance that CFRI offers can help reduce much of the emotional and physical distress associated with this prevalent, life threatening genetic disease.