CURE JM FOUNDATION

Rating: 4.96 stars   105 reviews

Issues: Health

Location: 836 Lynwood Dr Encinitas CA 92024 USA

Mission: As its name implies, the Cure JM Foundation, a 501c(3) non-profit organization, was created specifically to find such a cure, while also providing support and information for families suffering from JM.

2014 Top-Rated Nonprofit
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Community Reviews

Rating: 5 stars  

Cure JM has played a vital role in our lives for the last 9+ years. This disease is VERY rare and it isolates you. Cure JM has taken us out of isolation and connected us to a world that understands what we go through on a daily basis. This disease is constantly changing our daughter. But through all of the ups and downs the people we have come in contact with at Cure Jm are there to help support and guide. I hope we can always be a part of this wonderful family and be the Blessing to others that Cure JM has been to us!

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Rating: 5 stars  

This disease is rare, very rare, and is very difficult to go trough this alone. The uncertainty and the hopelessness is intolerable. CureJM has helped us to connect and share experiences with other families and to dissipate the hopelessness and uncertainty.

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Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2013

Rating: 5 stars  

My grandson was diagnosed with JDM six years ago. It was a struggle just to comprehend what this rare disease with no known cure meant for him. Information was sparse and hard to find. Then we located CureJM and we found, not just knowledge and the hope for a cure through the funding of research, but friends and understanding. Each day that goes by we find ourselves in contact with another family through CureJM. Sometimes we seek knowledge, always we find friendship, compassion, understanding and support. We cry togetherness, share joy, and are family.

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1 previous review
Rating: 5 stars  

My grandson was diagnosed with Juvenile Dermatomyositis nearly five years ago. There was so little information out there of this rare disease! When my daughter found CureJM the door opened to information for us. Since educating ourselves and seeking proper medical treatments, we are dedicated to the ideal of CureJM....that we find a cure and that no other child suffers with this rare disease. While there is no cure yet, CureJm works to fund research for better treatments, that elusive cure and to help being awareness to the public and the general medical field so that earlier diagnosis is possible. CureJM has become family.

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Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2013

Rating: 5 stars  

When my daughter was diagnosed with juvenile dermatomyositis, we were alone. There was no social media related to this, nor any groups. When we stumbled onto CureJM we were thrilled. there were others with this disease and they were able to give us reliable and easy to understand information as well as connect us to others. We are so grateful to them!

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Rating: 5 stars  

Like a ship being tossed on a stormy raging sea, describes how my family and I felt when our young daughter was 1st diagnosed with JM. We were so fortunate to connect with Cure JM shortly after her diagnoses. Cure JM instantly became a part of our extended family and they immediately provided the overwhelming support and resources that we desperately needed at that time. We have the deepest and most sincere admiration for this great nonprofit organization. Still today we see and feel the support and dedication of all the volunteers who serve not only on the board but throughout the organization. Everyone involved with Cure JM strives in their own personal ways along with collaborative efforts to find the ultimate cure for JM. I am humbled and honored to serve on the board. Cure JM is not just a board it's a large tenacious group of concerned caring people who love and support each other and their families who are all involved in doing what ever it takes to make sure no child has to suffer from JM and their ultimate goal is to truly reach a CURE for JM!!!

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Will you volunteer or donate to this organization beyond what is required of board members?

Definitely

How much of an impact do you think this organization has?

Life-changing

Will you tell others about this organization?

Definitely

When was your last experience with this nonprofit?

2014

1 previous review
Rating: 5 stars  

Within just a few short weeks after my daughters diagnosis my wife and I discovered Cure JM and it has changed our lives in such a positive uplifting way. This organization immediately provided us with a wealth of information, support and positive motivation to get involved to keep striving to find a cure for not only our little girl but for all the children and families affected by JM. I personally feel that our daughter would not be where she is today in her battle with JM if my wife and I hadn't immediately become involved in Cure JM. The board and all the other volunteers who serve have made and continue to make a life changing difference in our lives and especially in our daughters. I am so thankful that we discovered Cure JM and have made it an important part of our lives.

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Will you volunteer or donate to this organization beyond what is required of board members?

Definitely

How much of an impact do you think this organization has?

Life-changing

Will you tell others about this organization?

Definitely

When was your last experience with this nonprofit?

2012

Rating: 5 stars  

CureJM has kept me sane and carried me through many rough times. I don't know what I would do without the great people who keep it together.

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If I had to make changes to this organization, I would...

I wouldn't change a thing!

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2014

Rating: 5 stars  

I cant say enough good things about the CureJM foundation. They have helped our family with information, guidance, and connected us to other families dealing w/ JM. They have secured grant money to help with research and funded an information book about JM. With out them we would have been lost. Thank you CureJM for all that you do!

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1 previous review
Rating: 5 stars  

1 people found this review helpful

My son was diagnosed just shy of 2 years ago w/ JDM. When he was dx I had never heard of this disease. I found the curejm website and cannot express how grateful I am. The people on the board as well as other parents dealing w/ this have helped me through a very rough time in our lives. If it was just to let me vent for a moment to someone who understands or to answer quetions that I couldnt find the answers to, there is always some one there. There is no cure YET, But I feel that through the curejm foundation and the parents who volunteer there will be some day soon.

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I've personally experienced the results of this organization in...

They have provided much needed support.

If I had to make changes to this organization, I would...

None

Rating: 5 stars  

The Cure JM Foundation is a wonderful organization. Friends, information, resources, support, research, connections are just a few of the things that they have given our family.

When our daughter was diagnosed, 4 years ago, we got lucky and found the Cure JM Foundation, where we found information on her disease and learned about a book that would also help educate us. We were in panic mode and had no idea what we were getting into. Lucky for us, we found all kinds of wonderful support through the Cure JM Foundation.
Our journey has been filled with may downs and some ups, but along the way, we have always had the support of our Cure JM family. Amazing!

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Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

A lot

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2014

Rating: 3 stars  

Cure JM did send a welcome folder for my daughter.

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momof2girls1boy, I am personally saddened that your experience with Cure JM was not as good as it could have been. Providing support for families coping with Juvenile Myositis has always been a cornerstone of Cure JM’s mission statement. If there is something that we can do to improve we want to know about it so we can fix it. I hope that you will reach out soon, my email is below. Wishing you all the best, Shannon Shannon.Malloy@curejm.org

Rating: 5 stars  

Cure JM has been very supportive when my son past away a year go. With me doing a Benefit to help Cure JM awareness and help find a cure, they have been very helpful and supportive.

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How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2014

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