COLON CANCER ALLIANCE FOR RESEARCH AND EDUCATION FOR LYNCH SYNDROME

Rating: 5 stars   11 reviews

Issues: Health, Cancer

Location: 127-C West Oak Street % Dr. Sharon J Perlman Chicago IL 60610 USA

Mission: The Colon Cancer Alliance for Research & Education for Lynch Syndrome (CCARE) is dedicated to educating individuals and health care providers about Lynch Syndrome.
Results: EAT * DRINK* LAUGH * SHOP * MAKE A DIFFERENCE CCARE is hosting ComedyCARE 2011, an amazing night of improv and stand-up comedy on Saturday, July 16 at the Chicago Center for the Performing Arts, featuring a hysterical ensemble of talent. Order tix at www.fightlynchorg/comedycare.php

2011 Top-Rated Nonprofit
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Community Reviews

Rating: 5 stars  

Those near and dear to my heart have suffered and lost their lives to this tragic illness. I believe that with further research and education, many lives would be saved.

I've personally experienced the results of this organization in...

Watching those around me learn about the disease to identify and prevent.

If I had to make changes to this organization, I would...

Solicit for government funding.

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Rating: 5 stars  

The Colon Cancer Alliance for Research and Education for Lynch Syndrome has amazing volunteers committed to increasing Lynch Syndrome awareness. I'm proud to be affiliated with them.

I've personally experienced the results of this organization in...

providing support.

If I had to make changes to this organization, I would...

increase funding.

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Rating: 5 stars  

I recently learned that my brother was diagnosed with Lynch Syndrome and reached out to CCARE for information. Both Drs. Sharon and Neil Perlman were extremely knowledgable and also very supportive. I'm very grateful for such a professional and helpful organization.











I've personally experienced the results of this organization in...

getting informative and useful information and support.

If I had to make changes to this organization, I would...

give more money so they can continue to do the fantastic work that they do.

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Rating: 5 stars  

I became aware of Lynch Syndrome and its' impact on families about two years ago as a friend's family struggled with the loss of a loved one to colon cancer at a young age. Now related family members live with the ominous realization that they too may carry the genetic trait for this syndrome. I support fightlynch.org in its' goal to raise awareness about this genetic disease and to support research for a cure.

I've personally experienced the results of this organization in...

their support to educate families about Lynch Syndrome and the high risk of uterine cancer and colon cancer.

If I had to make changes to this organization, I would...

try to publicize the implications of Lynch Syndrome in susceptible populations and encourage genetic testing. Cancer testing must become a lifelong vigil for individuals with this genetic syndrome.

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Rating: 5 stars  

My cousin died of Lynch Syndrome when he was 5 months old. His death was especially hard for us because we weren't entirely sure why he was taken from us; at this time we didn't know about Lynch Syndrome. Sixteen years later we finally got our answer, and now we can do something about it! My family is so grateful for C Care, and the chance to fight this syndrome, so that others won't have to suffer what we suffered. Thank you, C Care!

I've personally experienced the results of this organization in...

See above.

If I had to make changes to this organization, I would...

Increase funding.

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Role: General Member of the Public
Rating: 5 stars  

Lynch has impacted my very dear friend's life and has brought about loss that she shouldn't have had to experience. This non-profit was established to educate others so that progress can be made through early detection and research.

I've personally experienced the results of this organization in...

Listening to presentations

If I had to make changes to this organization, I would...

more publicity and better funding

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Rating: 5 stars  

CCARE is a Wonderful non for profit that helped me understand and better educate my self as well as others in Colon Health.

I've personally experienced the results of this organization in...

I was able to educate my self and find suport with this group.

If I had to make changes to this organization, I would...

Have even more advertisement.

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Rating: 5 stars  

Lynch Syndrome takes far too many lives every year. This organization has undertaken the daunting task of educating the public and the medical community of this inherited syndrome. Through education, people will be able to get the appropriate genetic testing that could help save their life.

I've personally experienced the results of this organization in...

I have friends whose family are affected by this syndrome.

If I had to make changes to this organization, I would...

Help them continue their work to get the word out.

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Rating: 5 stars  

I am supporting Colon Cancer Alliance for Research and Education for Lynch Syndrome because it will help prevent the tragic loss of lives of too many. By educating the public, people will learn if they need to be tested for Lynch. A family history, exam and some tests can save a life, which might be yours. Please help yourself and others by supporting CCARE,

I've personally experienced the results of this organization in...

I personally have friends who have a family history of Lynch.

If I had to make changes to this organization, I would...

Continue to get the work out

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Rating: 5 stars  

I wanted to help out with this organization because of the devastating effects of Lynch Syndrome that I have seen in the family of a close friend. Hopefully with education of the public and medical professionals, additional screening and genetic testing will lower the incidence and severity of cancers in people at risk.

I've personally experienced the results of this organization in...

Increased awareness of Lynch Syndrome in friends and family.

If I had to make changes to this organization, I would...

It is still just getting started.

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