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Clusterbusters Inc

Rating: 4.85 stars   74 reviews 1,151

Address:

3850 Gaskins Road Suite 120 Richmond VA 23233 USA

Mission:

2015 Top-Rated Nonprofit
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www.clusterbusters.org

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Reviews for Clusterbusters Inc

Role: General Member of the Public
Rating: 5 stars  

I am a spouse of a episodic headache sufferer. It is agonizing for both the person that has it and the family that has to watch and feel helpless. This awful "illness" needs to be brought to the forefront of our medical and pharmaceutical community ASAP and the research needs to continue. Until you have cluster headaches or know someone that does...you will never understand the level of pain. Something needs to be done about this. This isn't about making money for our pharmaceutical companies...this is about finding desperately needed relief. They call it the "suicide headache' for a reason. How many lives have to be lost and pain endured before something is going to be done?!?!?! I am so thankful for Clusterbusters. It has given us so much information and people who understand at a time when you feel so alone.

 
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Rating: 5 stars  

1 person found this review helpful

As a supporter of a cluster headache sufferer, I can assure you that dealing with cluster headache can make you feel very lonely and helpless. Finding Clusterbusters Inc. has been instrumental in helping me know I am not alone and I have become a stronger, better supporter. No one understands how horrible this medical condition is better than those who suffer with it and their supporters. Clusterbusters Inc. offers much appreciated support, compassion, education, treatment options, and advocacy and I am very thankful for them.

 
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Rating: 5 stars  

I have had clusters for 20 years now and can say I was truly lost until I came across these guys and gals. The work they do is tireless and Bob Wold remembers everyone and always makes time to respond to any query.

I have been lucky enough to be in remission for 2 years but now they are back and this is the 1st place I visit as I know I will get the best help and advise from people who really understand this debilitating disease...

 
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Role: General Member of the Public
Rating: 5 stars  

2 people found this review helpful

I visit the Clusterbusters forum just about every day. My son suffers from this insidious disease. Cluster headache has got to be one of the worst conditions a person can have. Most people are unaware of how devastating cluster headaches really are. We need to raise awareness. I am grateful to have found the Clusterbusters website. Although my heart aches for the poor sufferers it is good to know that I am not alone as a person who is affected by this condition. There is a lot of useful information and even hope that something others have tried may work for us also.

 
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Rating: 5 stars  

1 person found this review helpful

I recently attended the 10th annual Clusterbuster Annual conference. My 10 yr. old son was diagnosed with episodic cluster headaches, earlier this year. I was desperate to get information on how to deal with, and live with this dreadful condition. Clusterbusters is an amazing group of sufferers, supporters and advocates. So many of the inroads in treating this disease have come from the interchanging of ideas and therapy options that the sufferers on the front lines have shared via groups like Clusterbusters. I am now armed with knowledge, options and incredible support from others I have met through this group.

 
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Rating: 4 stars  

2 people found this review helpful

ch sufferer for many years first at age 7
I had breaks but they went super chronic 7 per day kip ten three hours long
now these days I take melatonin 2 mg also verpamil but ween of it when possible i do notice if I dont have bits of verpamil i get bad shadows but am much better now aftrer finding about melatonin
May people with ch have the strength to not give in and keep fighting

 
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Rating: 5 stars  

2 people found this review helpful

Clusterbusters, President Bob Wold, has saved not only my dads life (chronic Cluster Headache Sufferer) but the lives of so many others that have to live with this undescriable pain, which is known to be the worst pain know to medical science thus the name "suicide headaches". My dad moved in with me years ago at age 28 and continues to live with me due to this debilitating condition/disease.

Bob Wold's knowledge, wisdom, compassion and commitment to educating and spreading awareness about Cluster Headaches is groundbreaking. I ask those of you reading this to take a minute to go to the cluster buster website and learn at least one fact about cluster headaches. Pass the one fact on to one other person asking them to do the same. That one thing could save so many lives. It saved my dads life and I can 100% say without a doubt Cluster Busters with President Bob Wold will open your eyes to this.

 
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1 previous review
Rating: 5 stars  

2 people found this review helpful

My father has suffered with Cluster Headaches for 17 years and I have become his primary care taker over the past 2 years. ClusterBusters and Mr. Bob Wold have saved my dads life. I will forever dedicate my life to do my part in helping. Mr. Bob Wold has stuck by my side not to mention thousands of others. He stood up and created ClusterBusters that brought a LIGHT and RAY of HOPE to my dad and I and thousands of people around the world. Thank You

 
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1 previous review
Rating: 5 stars  

3 people found this review helpful

Cluster Busters and most importantly Bob Wold founder of CBs has saved many CH sufferers lives by giving hope and unconditional support to all. My father is a 17 year CH sufferer that started in his 40s. Without Bob Wold immediately taking in a total stranger, me, at the most critical chronic CH state he was in, my father would not be here on Earth anymore. Thank You Bob Wold from the bottom of my HEART & SOUL. Bonnie Brackeen

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2014

 
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1 previous review
Rating: 5 stars  

5 people found this review helpful

Put into words so easy to for all to comprehend yet so unacknowledged, Cluster Headaches also known as "Suicidal Headaches" had brought my dad to his knees with a gun ready to end the Horrific Pain. If not for finding Cluster Busters at the perfect timing and having the help I so needed to keep my father alive, this would be a story of a wonderful man who took his life.

Will you volunteer or donate to this organization?

Definitely

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2012

 
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Role: General Member of the Public
Rating: 5 stars  

2 people found this review helpful

Cluster busters and it's advocates, members and support gave me my life back and the ability to take control over cluster headaches. Life saving.

 
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Rating: 5 stars  

3 people found this review helpful

I have suffered for 12 years and have been participating in ClusterBuster events for over 5 and every year gets better and bigger. And there's a reason. The people that make this organization tick are the most genuine, kindhearted, and loving people you'll ever meet. They have literally saved my life along with many others. I can't wait to see the things we achieve!

 
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Rating: 5 stars  

3 people found this review helpful

Clusterbusters literally saved my son's life and my sanity!! Best group of people I've ever met from the Top of to the bottom! Non-judgmental, scientific, reliable help and support!!!!!

 
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