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CLUSTERBUSTERS INC

Rating: 4.84 stars   64 reviews 1,359

Nonprofit Issues:

Health

Address:

1102 N Brandon Ave % Stuart A Miller Sterling VA 20164 USA

Mission:

2014 Top-Rated Nonprofit
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www.clusterbusters.com

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Reviews for CLUSTERBUSTERS INC

Rating: 5 stars  

My father has suffered with Cluster Headaches for 17 years and I have become his primary care taker over the past 2 years. ClusterBusters and Mr. Bob Wold have saved my dads life. I will forever dedicate my life to do my part in helping. Mr. Bob Wold has stuck by my side not to mention thousands of others. He stood up and created ClusterBusters that brought a LIGHT and RAY of HOPE to my dad and I and thousands of people around the world. Thank You

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1 previous review
Rating: 5 stars  

1 person found this review helpful

Cluster Busters and most importantly Bob Wold founder of CBs has saved many CH sufferers lives by giving hope and unconditional support to all. My father is a 17 year CH sufferer that started in his 40s. Without Bob Wold immediately taking in a total stranger, me, at the most critical chronic CH state he was in, my father would not be here on Earth anymore. Thank You Bob Wold from the bottom of my HEART & SOUL. Bonnie Brackeen

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2014

Was this review helpful? 
1 previous review
Rating: 5 stars  

4 people found this review helpful

Put into words so easy to for all to comprehend yet so unacknowledged, Cluster Headaches also known as "Suicidal Headaches" had brought my dad to his knees with a gun ready to end the Horrific Pain. If not for finding Cluster Busters at the perfect timing and having the help I so needed to keep my father alive, this would be a story of a wonderful man who took his life.

Will you volunteer or donate to this organization?

Definitely

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2012

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Rating: 1 stars  

1 person found this review helpful

A friend of mine donated cash to this place and they denied ever receiving the donation until my friend posted the proof on facebook after they had been ridiculed and bashed for claiming to have given a donation and the owner of cluster busters was forced to admit my friend gave them a donation but that was only after the people of cluster busters attacked him.. I wouldnt advise anyone giving to these people and ive contacted the IRS to let them know they are taking cash donations and not reporting them .. good luck with that

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Rating: 5 stars  

1 person found this review helpful

The reason I give them 5 STARS? This volunteer group is literally driven by the spirit of caring people helping each other!

What began as a small online support group has grown into a national cluster headache support/research/education/advocacy non-profit. Through their annual conferences, advocacy work, and projects which bring together patients, healthcare stakeholders and researchers, Clusterbuster's paves the way for medical advances on a disorder many in our community had barely heard of a few years ago.

Extraordinary organization!

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1 previous review
Rating: 5 stars  

5 people found this review helpful

A TOP NOTCH NON-PROFIT! Before I found Clusterbusters I felt hopeless after spending several years bouncing from one doctor to the next trying countless ineffective medications in search of pain relief from cluster headaches. It's because of their educational website and the peer support I received on their message board that I've finally been able to manage my chronic cluster headaches, return to full time employment, and very importantly ENJOY LIFE once again. Clusterbusters compassionate volunteers are dedicated to helping individuals with cluster headaches find pain relief as they actively pursue the medical community to research and find a cure for this debilitating disorder. I'm so thankful to Clusterbusters for all they have done for me and my family!

Will you volunteer or donate to this organization beyond what is required of board members?

Definitely

How much of an impact do you think this organization has?

Life-changing

Will you tell others about this organization?

Definitely

When was your last experience with this nonprofit?

2013

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Rating: 1 stars  

2 people found this review helpful

GAVE money to the owner of this place only to have its members say I was lying about donating and the owner of cluster busters refused to set the record straight publicly that I gave a donation and tell the people in his organization to stop accusing me of lying. I would never give to these people again they even tried to ruin my business by saying I was making money off them and not giving them my donation which was proven false when the owner of clusterbusters was forced to admit I did when I posted his thank you privately to me. these people are horrible.. calling me a liar and saying I never donated when I did. I have proof they did this and proof I donated.. do not give to these people they hurt people and dont care about people trying to help them . who takes someone's money then allows its organization members to attack the donator? and does nothing to stop it or set the record straight? look up holy grail mushroom spores on facebook for proof of what im talking about before you donate to these people..

If I had to make changes to this organization, I would...

be thankful for people like myself who care about helping others and actually gave money and stuff to make a difference .its people like me who want to help but get bullied and harassed by the very people who took my money to help their condition and cause?????

Was your donation impactful?

No

How likely is it that you would recommend that a friend donate to this group?

No

How likely are you to donate to this group again?

No

When was your last experience with this nonprofit?

2015

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Role: General Member of the Public
Rating: 5 stars  

2 people found this review helpful

Our Life Changed for the best, 1st time we met with the group was to advocate in Washington, DC for Headache Disorders. They are for the people and not there own pockets like so many groups out there. Looking for a cure and are there for the patients and families. Advocating, support and research!!!

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1 previous review
Rating: 5 stars  

1 person found this review helpful

With out this group I have no idea where my husband and i would be! My husband suffers from Chronic Cluster Headaches and the support from this group along with Advocating in Washington DC with them and research they are involved in they truly remarkable people! Also a Nonprofit so if at any time you want to donate this group truly using the money for research, education and support!.......!!!! ClusterBusters gave us hope again and continue every day to help people!

If I had to make changes to this organization, I would...

Make them rich!!!!

Will you volunteer or donate to this organization?

Definitely

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2014

Was this review helpful? 
1 previous review
Rating: 5 stars  

8 people found this review helpful

Clusterbusters has given our life a new meaning since my husband was diagnosed with Cluster Headaches in 2002...No where to go we found them on the web and each and everyone you talk to in this group at an instance you are family...everyone trying to cope and search for cure. Clusterbusters not only help each person, with information, but advocates in Washington DC and takes Cluster patients with them. We were part of that so we know this to be true! Along with other research projects for the cure of all Cluster Headache Patients in the world also know as The Suicide Headache. Truly out for cue and not pockets!!!!!!!
Thank you to all for every thing you do and would not miss being a part of this entire Family.....Cluster Busters is where to donate to truly make a difference!

If I had to make changes to this organization, I would...

Have an Endless Bank Book!

Will you volunteer or donate to this organization?

Definitely

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2013

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Role: General Member of the Public
Rating: 5 stars  

2 people found this review helpful

I was diagnosed with CH last year after being misdiagnosed with migraines for 10 years. After I was informed of what kind of headache I was really having, I started doing research. Clusterbusters helped me figure out different things I could try to help ease the pain during an attack. Without them I would have been clueless about treatment options for these headaches. I am grateful that I found their website and an able to continue with my life.

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Rating: 5 stars  

2 people found this review helpful

Clusterbusters and Bob Wold have given me my life back. In return, I have devoted the last ten plus years of my life to volunteering and advocating for others with this horrendous condition called cluster headache, aka suicide headache, aka the worst pain known to man.

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1 previous review
Rating: 5 stars  

8 people found this review helpful

As a chronic sufferer of cluster headaches, aka suicide headaches, this nonprofit has literally saved my life. I am so grateful that I have volunteered at different levels for this organization for over seven years, and it's still not enough. How can it ever be enough when you owe your life to someone? Clusterbusters changed me from a state of hopelessness to one of optimism and gratitude. I advocate not only for myself, but for many others as well which imbibes me with a sense of satisfaction and accomplishment that few will ever know.

If I had to make changes to this organization, I would...

I sincerely can't think of a thing that I would do to make any changes to this organization, other than infuse it with more donations and publicity.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2013

Was this review helpful? 
Rating: 5 stars  

1 person found this review helpful

Absolutely the best and most current information for those suffering cluster headache. As a non profit clusterbusters is truely an advocate, always raising awareness.

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Rating: 5 stars  

2 people found this review helpful

Yes, as the other commenters have said, this is a great organization with compassionate, knowledgeable people everywhere--in its leadership, in its members, and in its volunteers.

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Rating: 5 stars  

1 person found this review helpful

This website has amazingly compassionate people and a wealth of information!

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