CLUSTERBUSTERS INC

Rating: 4.97 stars   60 reviews

Issues: Health

Location: 1102 N Brandon Ave % Stuart A Miller Sterling VA 20164 USA

Mission:

2014 Top-Rated Nonprofit
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Community Reviews

Role: General Member of the Public
Rating: 5 stars  

1 person found this review helpful

Our Life Changed for the best, 1st time we met with the group was to advocate in Washington, DC for Headache Disorders. They are for the people and not there own pockets like so many groups out there. Looking for a cure and are there for the patients and families. Advocating, support and research!!!

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1 previous review
Rating: 5 stars  

With out this group I have no idea where my husband and i would be! My husband suffers from Chronic Cluster Headaches and the support from this group along with Advocating in Washington DC with them and research they are involved in they truly remarkable people! Also a Nonprofit so if at any time you want to donate this group truly using the money for research, education and support!.......!!!! ClusterBusters gave us hope again and continue every day to help people!

If I had to make changes to this organization, I would...

Make them rich!!!!

Will you volunteer or donate to this organization?

Definitely

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2014

Was this review helpful? 
1 previous review
Rating: 5 stars  

7 people found this review helpful

Clusterbusters has given our life a new meaning since my husband was diagnosed with Cluster Headaches in 2002...No where to go we found them on the web and each and everyone you talk to in this group at an instance you are family...everyone trying to cope and search for cure. Clusterbusters not only help each person, with information, but advocates in Washington DC and takes Cluster patients with them. We were part of that so we know this to be true! Along with other research projects for the cure of all Cluster Headache Patients in the world also know as The Suicide Headache. Truly out for cue and not pockets!!!!!!!
Thank you to all for every thing you do and would not miss being a part of this entire Family.....Cluster Busters is where to donate to truly make a difference!

If I had to make changes to this organization, I would...

Have an Endless Bank Book!

Will you volunteer or donate to this organization?

Definitely

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2013

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Rating: 5 stars  

1 person found this review helpful

I was diagnosed with CH last year after being misdiagnosed with migraines for 10 years. After I was informed of what kind of headache I was really having, I started doing research. Clusterbusters helped me figure out different things I could try to help ease the pain during an attack. Without them I would have been clueless about treatment options for these headaches. I am grateful that I found their website and an able to continue with my life.

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Rating: 5 stars  

1 person found this review helpful

Clusterbusters and Bob Wold have given me my life back. In return, I have devoted the last ten plus years of my life to volunteering and advocating for others with this horrendous condition called cluster headache, aka suicide headache, aka the worst pain known to man.

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1 previous review
Rating: 5 stars  

7 people found this review helpful

As a chronic sufferer of cluster headaches, aka suicide headaches, this nonprofit has literally saved my life. I am so grateful that I have volunteered at different levels for this organization for over seven years, and it's still not enough. How can it ever be enough when you owe your life to someone? Clusterbusters changed me from a state of hopelessness to one of optimism and gratitude. I advocate not only for myself, but for many others as well which imbibes me with a sense of satisfaction and accomplishment that few will ever know.

If I had to make changes to this organization, I would...

I sincerely can't think of a thing that I would do to make any changes to this organization, other than infuse it with more donations and publicity.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2013

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Rating: 5 stars  

Absolutely the best and most current information for those suffering cluster headache. As a non profit clusterbusters is truely an advocate, always raising awareness.

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Rating: 5 stars  

1 person found this review helpful

Yes, as the other commenters have said, this is a great organization with compassionate, knowledgeable people everywhere--in its leadership, in its members, and in its volunteers.

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Rating: 5 stars  

Knowledge, support, compassion...real people who truly understand this horrific ailment! I am so very grateful for them!

If I had to make changes to this organization, I would...

none

Will you volunteer or donate to this organization?

Unsure

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2014

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Rating: 5 stars  

Clusterbusters saved my life. I hope every sufferer find this organization.

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2014

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Rating: 5 stars  

1 person found this review helpful

ClusterBusters is a fantastic resource for folks suffering from this awful syndrome. Its extensive library of information on treatments is impressive, but the people active on this site are just plain awesome. Post a question, or describe what you are going through, and you will be greeted by a chorus of replies providing information, ideas, and support. Cluster headaches are agonizing, but the real peril they pose to those afflicted is despair, the suffocating sense that there is no escaping recurrence of the pain and little of life to enjoy between the hits. ClusterBusters offers hope. Count me as one of many grateful beneficiaries.

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2014

Was this review helpful? 
Rating: 5 stars  

1 person found this review helpful

These people are like family. Don't know where my husband and I would be , if not for them!

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