CHILDRENS LEUKEMIA FOUNDATION OF MICHIGAN

Rating: 1 stars   3 reviews

Issues: Health, Cancer

Location: 5455 Corporate Drive Suite 306 Troy MI 48098 USA

Mission: Children's Leukemia Foundation of Michigan, serving children and adults, provides information, support, financial assistance to Michigan families affected by leukemia and related disorders. CLF also funds medical research conducted exclusively at Michigan's two NCI-designated cancer centers, Barbara Ann Karmanos Cancer Institute and the University of Michigan Cancer Center. Finally, CLF provides small grants to fund professional development or special projects that enhance the practice of health professionals who provide care or treatment to people in Michigan with leukemia, lymphoma or a related diagnosis.
Results: Actively serving over 4,400 patients and families in the state of Michigan through information, emotional support and financial assistance.
Target demographics: Children or Adults in the State of Michigan diagnosed with leukemia, lymphoma or a blood related disorder
Geographic areas served: State of Michigan
Programs: The Social workers at Children’s Leukemia Foundation of Michigan (CLF) listen to their patients and caregivers, determining needs and providing a steady hand through tough times. CLF provides casework and information and referral services in order to guide families to the resources they need. CLF offers a Resource Room that provides print, audio, video and electronic information to help families learn more about cancer and surrounding issues. The Resource Room is available on either a walk-in or mail-out basis. All newly registered families receive Stepping Stones, a 150-page binder filled with facts, interactive exercises and referrals that empower families with the information they need to gain answers to their questions.

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Community Reviews

Rating: 1 stars  

Had a prior interest in this charity so I check in with it now and then via Guide Star to see how its doing. I note that it now has a "Guide Star Exchange Seal, demonstrating its commitment to transparency" yet its most recent 990 is dated 19 months ago (6/30/2011). Furthermore, it does not publish an annual report or have an audit on Guide Star and the needs assessment it has on its website to keep abreast with the needs of families it serves has not been updated since 2004. How is that transparency? Rather, it seems high on fundraising but low on disclosure as to how funds are used.

Was your donation impactful?

Unlikely

How likely is it that you would recommend that a friend donate to this group?

No

How likely are you to donate to this group again?

No

When was your last experience with this nonprofit?

2008

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Review from Guidestar
1 previous review
Rating: 1 stars  

I used to support this organization but have noticed that CLF no longer publishes a newsletter or annual report and hasn't updated its needs assessment since 2004. And while IRS 990's for CLF show losses in 2008 and 2009 - no surprise given the poor economy - the CEO's salary increased both years as well as in 2010 when CLF barely broke even. During that period, research contributions ceased and patient aid all but disappeared. However, fundraising activity is up and its website is pretty slick. In my estimation, this once reputable charity is now all smoke and mirrors.

Will you volunteer or donate to this organization?

No

How much of an impact do you think this organization has?

A little

When was your last experience with this nonprofit?

2008

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Review from Guidestar
Rating: 1 stars  

1 person found this review helpful

CLF has yet to post their 990's for 2008. Calls and letters to the CFO and the Board Chairman regardging the status of the Sylvia Brown Endowment have never been responded to.

I've personally experienced the results of this organization in...

...

If I had to make changes to this organization, I would...

Focus on patient services

What I've enjoyed the most about my experience with this nonprofit is...

...

The kinds of staff and volunteers that I met were...

Volunteers were wonderful. Staff has now either quit or been fired so I have no opinion of the current staff. CFO has been unresponsive

If this organization had 10 million bucks, it could...

?

Ways to make it better...

The CFO and or Board of Directors would have addressed my concerns regarding the expenditure of donations.

In my opinion, the biggest challenges facing this organization are...

Legitimacy

One thing I'd also say is that...

I find it very disconcerting that CLF has yet to post its 990s for 2008. We have no status of the Sylvia Brown Endowment, nor are we aware of the salery of the CFO and staff.

When was your last experience with this nonprofit?

2008-1-01

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