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Chiari & Syringomyelia Foundation (CSF) Overview
The Chiari & Syringomyelia Foundation, Inc. (CSF) was established in October 2007 by a group of passionate and dedicated people who are committed to aggressively pursuing a cure for Chiari malformations (CM) and syringomyelia (SM). Our Medical Research Board consists of leaders in neurosurgery, neurology, neuroradiology, genetics, veterinary medicine, and engineering. Our Vision: Within a generation, we will be the preeminent world-wide resource for professional and laypeople seeking accurate and current information about treatments for and best practices surrounding the management of CM and SM. With our unique resources, both financial and intellectual, we will be the leader in driving ongoing programs and research focused on earlier diagnosis and better outcomes for people suffering with these disorders.
Here are just a few of the items we have accomplished and helped to fund since our inception in 2007:
- research projects involving CM, SM and related disorders
- educational lectures given by medical professionals
- several fundraising efforts including (not limited to): an annual Bobby Jones Golf Tournament in Atlanta, GA, many national unite@night walks, as well as several dinners, dances, etc...
- annual Think Tank of thought leaders across nation
- International Hydrodynamics Symposium
- a new campaign to educate medical professionals about CM, SM and related disorders: "Consider Chiari"
And we have so many more ideas! If you would like to help us out, you can either donate directly or actively volunteer at events such as these by starting a CSF Co-Op: http://csfinfo.org/startco-op
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I was diagnosed with an incurable disorder at the age of 34. The word "Chiari" entered my world and changed my life. I went from an active, teacher mom of 2 young children to a parent who struggled to stand on her own two feet. I discovered the Chiari & Syringomyelia Foundation as I researched my...
I began working with CSF two years ago as a Steering Committee member of the Bobby Jones Classic for CSF at Bobby Jones' home course, East Lake Golf Club, just outside of Atlanta, Ga. We are now in our third year of the Bobby Jones Classic for CSF and I am more impressed each year with the ...
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As a Board member, I have had the privilege of working with the staff and other volunteers within CSF. The organization is so focused on finding a cure for chiari and syringomyelia that I believe it will become a reality! It is a blessing to be a part of such a wonderful community of people who ...
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