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Rhode Island 02864

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Target demographics: raise money for research and awareness

Direct beneficiaries per year: launch this non profit and begin to fund new research opportunites to bring access to more patients

Geographic areas served: the Niemann Pick Type C Community

Programs: parent to parent consultation, an internationally collaborative group of parents, researchers and physicians using social media to connect and advance options for treatment. We are presently seeking to establish an East Coast Treatment & Research Center for the disease.

Get Treatments out of the Lab and Into the Children!

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Shannon Reedy of Chase the Cure takes so much time to assist other families dealing with NPC while still caring for her own son suffering from this awful disease. She has helped our family immeasurably since our son's diagnosis and is someone I would credit with complete honesty and genuineness. She... more »
Having a Child diagnosed with any rare disease is bad enough. The constant worry, time and effort that goes into raising such as child is monumental. It is a constant struggle with the unknown When a parent find out that their kid/s has NPC, it is like the whole world stops. There are so many ... more »
A primary goal of Chase The Cure, Inc. is to fund promising new research in the hope it will benefit the current generation of Niemann Pick patients. Through this organization, Shannon openly shares the journey of her son, Chase, while providing a valuable resource for members of the Niemann Pick ... more »
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Latest Photo by Chase The Cure, Inc
Latest Photo by Chase The Cure, Inc

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