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Nonprofit Overview

Causes: Digestive Diseases & Disorders, Health, Lung Diseases

Mission: CSA is a member-based, non-profit organization dedicated to enchaning the lifestyle of those with celiac disease by developing and disseminating educational materials and gluten-free diet information world wide and to support and publicize related research; to serve as a vehicle for mutual support opportunities; and to work for improved food labeling practices for ingredients that affect those maintaining a gluten-free food plan.

Programs: Celiac sprue association is the largest member-based non-profit celiac organization in the united states. Csa provides accurate information on celiac disease & dermatitis herpetiformis to the newly diagnosed, the medical community and other concerned individuals through materials that have been reviewed and approved by a medical advisory board. Provides support to celiac sprue patients and dermatitis herpetiformis patients and their families.

annual conference offering educational sessions on celiac disease and dermatitis herpetiformis

Community Stories

7 Stories from Volunteers, Donors & Supporters

Client Served

Rating: 5

I love their newsletter and great website. All of thier work is very professional and for the members and individuals with celiac disease. They are truly for the clients and work for the good of individuals with celiac disease

Volunteer

Rating: 5

I do not have celiac disease, but my friends do and I have seen, first hand the impact of this volunteer based organization. I have been in the CSA office when the toll free phone has been ringing off the wall with people needing help, asking questions about their disease. The wonderful, caring staff work very hard to make everyone that contacts them feel important. I have also worked to help with the educational offerings that CSA distributes. They have a great collection of printed material and an extremly popular website. I know many use and trust the CSA Product Listing. Truly, CSA members live the CSA motto-"Celiacs Helping Celiacs!"

Pat H.

Client Served

Rating: 5

In 2005 I sought help from CSA because no other treatment could be found for my various painful and worsening symptoms. Through CSA I finally found answers and relief from my symptoms CSA's outreach tells medical and lay-persons alike that gluten in wheat, rye, barley, cross-contaminated oats and all the derivites therefrom, is what sickens. Their research, compilation of data and constant updates on treatment strategies truly saves lives and reduces suffering. It takes a great deal of work to explain elusive celiac disease, to dispel the misconceptions of what CD is and what causes it. But, through CSA's efforts our nation becomes healthier one person at a time. Funding for CSA to continue research and awareness is especially crucial!

Client Served

Rating: 5

CSA has done a tremendous job helping the public understand Celiac Disease. This non-profit group has a wonderful website full of a plethora of helpful information for both those who are newly diagnosed and those who have had CD for a while and need guidance.
I love their motto! Celiacs helping Celiacs.

Board Member

Rating: 5

I was diagnosed with celiac disease in the early 1940s. I discovered the Celiac Sprue Association in the 1980s and joined immediately. The organization has been a tremendous help in my disease education as well as member support. I joined the board in the early 1990s and have never worked with a group of more dedicated people. The organizations primary goal is to help create a better life for those with celiac disease and related illnesses and sensitivities. The organization has over 130 chapters, 140 Resource units and approximately 7-8.000 members world wide. It is the largest member based celiac organization in the United States.

5

Volunteer

Rating: 5

This organization for individuals with celiac disease and dermatitis herpetiformis is really a dedicated and caring group to work with and at a very professional level. They have a motto of "Celiacs Helping Celiacs" and they really do just that. I have learned much from their website and the many free materials they distribute. They have a wonderful newsletter and I would reccomend buying their CSA Product Listing. It is the bible for people with celiac disease. Thank you, thank you, thank you CSA.

5

Volunteer

Rating: 5

I found out about this organization in the 1980s. Having been originally diagnosed in the 1940s and again in the 1960s, I was looking for help. CSA was able to help me with my diet and by my attending their national conferences and local support groups, I learned even more about my disease. This experience enabled me to better communicate with my physician and take control of my illness.

Review from Guidestar