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Phone: 888-722-3132
333 Mamaroneck Ave
# 492

White Plains
New York 10605

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CCF's mission is to educate patients, healthcare professionals and the public regarding carcinoid and related neuroendocrine tumors, to bring about greater awareness of these rare cancers, to support NET cancer patients and their families, and to serve as patient advocates.

There are at least 110,000 people living with carcinoid/NETs in the United States today, with approximately 11,000 new cases diagnosed per year.
The philosophy of CCF is to disseminate accurate, up-to-date information about diagnosis, treatment, and surveillance options to maximize survival and quality of life for those individuals who suffer from these rarecancers. We strive, as do the multitude of carcinoid/NETs national and international experts, to find a cure. CCF works closely with both U.S. and international medical experts, patient advocate organizations, and support groups. Since 2010, the Foundation has been a member of the Worldwide NET Cancer Awareness Day Alliance, an international organization dedicated to bringing about greater awareness of NET cancers.

The Carcinoid Cancer Foundation, the first and oldest foundation of its kind in the United States, has earned worldwide recognition as a resource for patients, medical professionals, and researchers. Over 1,125,000 people from more than 100 countries worldwide have visited CCF’s website, considered to be one of the most authoritative sources for neuroendocrine tumor (NET) information.

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Like so many others , my diagnosis with carcinoid of the mid-gut was a total surprize. I had several colonoscopies and no word of this dreaded disease. Then, while on vacation I was hit with a recurring feeling of bloating and back discomfort, much like a gallbladder attack, since I already had my ... more »
I was diagnosed with carcinoid cancer of the small intestine two years ago. My tumor was caught very early by my gastroenterologist during a colonoscopy. I received excellent surgical care as well, but after that no one seemed to know what to do with me. They could not make any recommendations as... more »
Hi! I was diagnosed in 2005 with carcinoid of the small intestine with mets to nodes. I did not understand how rare this form of cancer was. I was told if I had to have cancer, this was the best kind as it is slow growing. I started to research NETS and I learned much from this site! I haave ... more »
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