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166 Humphries Dr
Ohio 43068

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To be an international support and research networking organization for families of children and young adults with an inherited neurological disorder known as Batten Disease.

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I am a Registered Nurse who works in a clinic with people with Batten Disease. The BDSRA has been a wonderful resource and support for our clinicians and families... more »
I became involved with BDSRA shortly after learning that both of my children were affected. The organization is truly a Light in a World of Darkness and the relationships I have made with other families is irreplaceable. One of the biggest things the organization did for us was to provide some ... more »
I have been a member of BDSRA since 2008, the year my world literally changed forever. My sweet, rambunctious, wild, tough little man was diagnosed with Batten Disease. We went from being a happy healthy family to dealing with THE WORST THING ANY FAMILY CAN GO THROUGH! To say the support we have ... more »
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