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BATTEN DISEASE SUPPORT AND RESEARCH ASSOCIATION Overview
To be an international support and research networking organization for families of children and young adults with an inherited neurological disorder known as Batten Disease.
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I am a Registered Nurse who works in a clinic with people with Batten Disease. The BDSRA has been a wonderful resource and support for our clinicians and families...
I became involved with BDSRA shortly after learning that both of my children were affected. The organization is truly a Light in a World of Darkness and the relationships I have made with other families is irreplaceable. One of the biggest things the organization did for us was to provide some ...
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I have been a member of BDSRA since 2008, the year my world literally changed forever. My sweet, rambunctious, wild, tough little man was diagnosed with Batten Disease. We went from being a happy healthy family to dealing with THE WORST THING ANY FAMILY CAN GO THROUGH! To say the support we have ...
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