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Phone: 703-299-1144
1321 Duke Street, Suite 304
Alexandria
Virginia 22314
USA
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Geographic areas served: International

Programs: In July 2010, FightSMA announced a new fundraising campaign for spinal muscular atrophy (SMA) gene therapy, “Realizing the Dream.” FightSMA is collaborating with the Santa Barbara-based Gwendolyn Strong Foundation, to form a bi-coastal partnership with a common goal: to bring SMA gene therapy to clinical trial.

FightSMA’s objective for the balance of 2010 is to complete funding for Phase One ($250,000) and then for Year-One of Phase Two of the research program. “The first objective is to build a solid foundation of safety and to eliminate toxicity,” said Dr. Chris Lorson, FightSMA Science Director. Additionally, FightSMA plans to raise another $250,000 to fund the first year of Phase Two (Delivery & Efficacy). The “Realizing the Dream” program will be accomplished through a series of campaigns. Completing these two Phases will bring SMA gene therapy significantly closer to clinical trial.

To learn more about gene therapy and how to become more involved in "Realizing the Dream," visit www.FightSMA.org.

Mission:
FightSMA, known legally as “Andrew’s Buddies Corporation,” was created to strategically accelerate the search for a treatment and cure for spinal muscular atrophy (SMA), a deadly crippler and the number-one inherited cause of infant death. The organization pursues this objective by increasing awareness and funding SMA research.
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09/10/10
Andrew's Buddies is one of the most rewarding organizations with which I have ever been involved. The dedication of staff,doctors and volunteers to find a cure for the children and assist the families are second to none. The strides made over the years from a small kitchen table group to a ... more »
06/08/10
Fight SMA works tirelessly to advocate for more awareness, funding, and attention for spinal muscular atrophy, the #1 genetic killer of young children, and they do so in a positive, collaborative, and proactive manner. They literally gave my family hope and focus at the most devastating time in our ... more »
06/08/10
When my daughter was diagnosed with SMA I was devestated and didn't know where to turn. I found Fight SMA and felt immediate support. Through Fight SMA I knew we were not alone and I gained hope for the finding of a cure/treatment for SMA, not only to help my daughter but to help all of the other ... more »
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