Andrew's Buddies Corporation

Rating: 5 stars   3 reviews

Issues: Cancer

Location: 1321 Duke Street, Suite 304 Alexandria VA 22314 USA

Mission: FightSMA, known legally as “Andrew’s Buddies Corporation,” was created to strategically accelerate the search for a treatment and cure for spinal muscular atrophy (SMA), a deadly crippler and the number-one inherited cause of infant death. The organization pursues this objective by increasing awareness and funding SMA research.
Geographic areas served: International
Programs: In July 2010, FightSMA announced a new fundraising campaign for spinal muscular atrophy (SMA) gene therapy, “Realizing the Dream.” FightSMA is collaborating with the Santa Barbara-based Gwendolyn Strong Foundation, to form a bi-coastal partnership with a common goal: to bring SMA gene therapy to clinical trial. FightSMA’s objective for the balance of 2010 is to complete funding for Phase One ($250,000) and then for Year-One of Phase Two of the research program. “The first objective is to build a solid foundation of safety and to eliminate toxicity,” said Dr. Chris Lorson, FightSMA Science Director. Additionally, FightSMA plans to raise another $250,000 to fund the first year of Phase Two (Delivery & Efficacy). The “Realizing the Dream” program will be accomplished through a series of campaigns. Completing these two Phases will bring SMA gene therapy significantly closer to clinical trial. To learn more about gene therapy and how to become more involved in "Realizing the Dream," visit www.FightSMA.org.

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Rating: 5 stars  

Andrew's Buddies is one of the most rewarding organizations with which I have ever been involved. The dedication of staff,doctors and volunteers to find a cure for the children and assist the families are second to none. The strides made over the years from a small kitchen table group to a nationally based non-profit corporation fighting for the health of children says everything about Marhta and Joe Slay's determination and dedication.

I've personally experienced the results of this organization in...

by attending their annual "Working on the Hill" meetings to serving on Andrew's Buddies board

How frequently have you been involved with the organization?

About once a year

When was your last experience with this nonprofit?

2010-1-01

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Role: Client Served
Rating: 5 stars  

7 people found this review helpful

Fight SMA works tirelessly to advocate for more awareness, funding, and attention for spinal muscular atrophy, the #1 genetic killer of young children, and they do so in a positive, collaborative, and proactive manner. They literally gave my family hope and focus at the most devastating time in our lives. They are amazing!!!

I've personally experienced the results of this organization in...

Fight SMA literally gave my family hope and a focus to advocate for more at a time when my family was utterly devastated and lost in that despair.

How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?

2010-5-01

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Rating: 5 stars  

7 people found this review helpful

When my daughter was diagnosed with SMA I was devestated and didn't know where to turn. I found Fight SMA and felt immediate support. Through Fight SMA I knew we were not alone and I gained hope for the finding of a cure/treatment for SMA, not only to help my daughter but to help all of the other families dealing with this devestating disease. Through the "Fighter Mom" handbook I have gained tips on how to bring awareness to SMA and ideas about how to fundraise for our cause. The team of professionals that Fight SMA has been able to put me in touch with has been outstanding and very insightful. I am eternally grateful for the support, hard work, and help from Fight SMA/Andrew's Buddies.

I've personally experienced the results of this organization in...

The annual Fight SMA conference as well as Fighter Mom strategies.

How frequently have you been involved with the organization?

About every six months

When was your last experience with this nonprofit?

2010-4-01

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