33 Stonehedge Wy P O Box 875
When Keith Orsini was diagnosed with Reflex Sympathetic Dystrophy Syndrome (RSDS) in April of 1993, we discovered that his Doctor could give little more than a name for his condition.
We searched everywhere but found a HUGE hole where information should have been.
As we searched more, we then compiled such a huge wealth of information that it compelled us to find a way to share this information with patients and the Health Professionals charged with their care.
Early proper diagnosis and treatment would help these patients to avoid a lifetime of pain caused by this progressive disease of the Autonomic Nervous System.
Originally incorporated in 1995, we received our 501(C)(3) status and are known as the AMERICAN RSDHope GROUP.
Our purpose is to make information available, on a National level to patients, their families, and their Health Care Professionals.
Our internet presence is www.RSDHope.org