I have had Lupus for over 30 years and started as a volunteer with the ALR Central New Jersey in 2009 where I met many new people in the Lupus community.
The first thing that impressed me about the organization was the fact that 100% of the donations are strictly to fund Initiatives that hopefully will take us one-step closer to helping find a cure for lupus. The more people know about lupus, the better support there will be for those living with the disease and the sooner we can conquer it.
Throughout the years, many family members and friends have been diagnosed with Lupus and because of my experience with ALR, I introduced them to the website that is very informative. Thank God for ALR.
This organization is an instrumental force in lupus research and lupus awareness. All donations go directly toward research. As a lupus patient, it is rewarding to know that people are committed to finding a cure and ALR is connected with an extensive number of doctors as well as researchers who are on the forefront of best practices. I not only serve on the Multicultural Task Force, but I am also a walker for the cause. I highly respect the efforts of ALR.
I have been in my battle with lupus for almost 20 years. And have never made it to a "remission" stage, it seems as if I am in a constant flare. I had tried every medication on the market with no avail. Then I was enrolled in a research study to try a new drug since none of the current ones available did anything for me. I ended up not being able to complete the study, but the one great thing that came out of my journey was that I learned about the ALR. I was intrigued, I had to know more. The Alliance for Lupus Research is a great charity that raises money and awareness for lupus research. And unlike most charities the ALR has no overhead costs, the founder pays the staff and board members. That means 100% of all money raised/donated goes directly to research. The study that I originally was enrolled in later passed all tests and requirements with the FDA, shortly there after a new drug falled Benlysta was released. It was the first new lupus drug released in over 52 years thanks to the help and funding by the ALR. By far this is not our cure, but it's one step closer. This is one charity that when you donate to, you can take pride in knowing the fact that every single penny donated is going directly to research, and know that you were a part of the next step on the way to a cure.
I have been involved with the ALR for the past five years as a walker, team captain and member of the Multicultural Outreach Task Force. It is an amazing organization filled with caring and dedicated people with the same goals -- to prevent, treat and cure lupus, as well as spread lupus awareness. One of the things that makes it stand out is that it is not just a nonprofit organization, it is a FAMILY! I have been to many events and walks and I can honestly say. There are no strangers -- we are all one family and we care about all of our members. I have had the privilege and honor to meet so many wonderful people from the ALR staff to members of the committee. Hats off to the many, beautiful women that I have met and come to know and love who suffer with this disease every day with so much courage. They are my friends and my family.
The Alliance for Lupus Research has taught me as a Mom in denial, to accept the diagnosis for my daughter. ALR educated me about the disease. Through that process not only have I accepted it's challenges, I have made it my life's work to fight alongside ALR to find a cure.
I have found that only ALR understands the importance of research and the necessary collaboration with other organizations working with Lupus patients and supporters.
I have Lupus and started volunteering with the ALR a few years ago. I love that 100% of the money raised goes to research. I also like that the board is always thinking of ways to spread awareness to the entire country with new Walks and the new Multi Cultural Task Force.
The ALR is a great organization that has helped me spread awareness and shine a light onot the effects of lupus.
I am a Lupus patient and have been volunteering with ALR for years. The ALR is an amazing organization. There are many charitable organizations but what attracts me most to the ALR is that 100% of all donations go to the funding of Lupus Research. Also, ALR is a family; they take personal interest in each lupus patient, donor and volunteer. They provide a wealth of information for individuals such as electronic communications, literatures and seminars. I really enjoy the video series The Faces on Lupus, which provide a wealth of information from patients’ stories to doctors sharing their research breakthrough. The ALR offers hope to those of us with Lupus.
I'm a Lupus patient that has volunteered with the ALR since 2008. I admire the way this organization has pulled together multicultural communities the way no organization ever has before. Keep up the great work ALR~You've made a difference! K. Kelly
The Alliance for Lupus Research is one of the most professional organizations I've worked with. I've been a partner with the ALR for the past 5 years and it's because of the interpersonal relationships I've made with the staff and the organization's laser focus on finding a cure.
The ALR continues to seek innovative ways to raise awareness and engage sponsors.
It's not too often that you find an organization that utilizes 100% of its financial support towards its cause.
I'm proud to be a partner.