Alagille Syndrome Alliance Overview
Target demographics: Everyone with ALGS - infants, children, teens, young adults, adults... as well as their families, care givers, and health care providers.
Someone who had 3 hours of volunteer time could: help with researching available grants to fund publication of our revised ALGS in the Classroom booklet; or assist with filing or other clerical tasks in our office (if you live in the Portland OR area); or review a page or two of our website to identify updates that may be needed
Geographic areas served: Worldwide
Programs: We have a website at www.alagille.org with a wealth of information and links to helpful resources, as well as a bulletin board. We are on Facebook, Twitter and YouTube, publish a quarterly newsletter, and offer several helpful publications for families including a DVD on ALGS. Every three years we host a family conference, and in the years in between we host AGS Family Education Days.