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David Wolfesky

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2 reviews

Review for Cystic Fibrosis Foundation Headquarters, Bethesda, MD, USA

Rating: 1 stars  

With the healthcare system the way it is, The Cystic Fibrosis Foundatin needs to change to change their mission statment and provide more direct support to patients.
Their oriianl not for profit pharmacy should be a not for profit pharmacy. They are putting ptients in debt while their pstients are raising millions of dollars to the cause.

It's time for a change

I've personally experienced the results of this organization in...

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If I had to make changes to this organization, I would...

Yime yo change your goals and mision

Role:  General Member of the Public & [.
 

Review for The National Organization For Rare Disorders, Danbury, CT, USA

Rating: 1 stars  

rarediseases.org is far removed from knowing the patients they serve.

If I had to make changes to this organization, I would...

Become more involved with the patient community it serves

Role:  General Member of the Public