My Nonprofit Reviews

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2 reviews

Review for The Oral Cancer Foundation, Newport Beach, CA, USA

Rating: 5 stars  

My husband is a 3 time Oral Cancer Survivor and this website has been a life-line for me. In the first bout, I went to the site nearly everyday, finding answers to my questions regarding his sickness. The others who had already been through, or were currently going through treatments were full of information and tips and tricks on how to make life easier for the patient. We are active in the OCF community and have made quite a few virtual friends through it, but we have also gained some real friends. Because of the information on the site we were able to take part in our first oral cancer walk in Seattle, WA. We live on the other side of the state and we gathered more than 20 friends to caravan over to Seattle and participate in the event. Our team raised nearly 10,000 and thankfully we know that the greatest portion possible is used for awareness campaigns and research.

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Role:  Donor

Review for The Oral Cancer Foundation, Newport Beach, CA, USA

Rating: 5 stars  

The Oral Cancer Foundation is an amazing group of individuals that have experienced through thier own battle, or through the battle of loved ones the devestation and victories of Oral Cancer. My husband was diagnosed in 2005 as a 33 year old man. As his cancer is very rare in his age group, there was not a lot of information available as to it. Through the OCF I was able to research and be apart of a community that had experience in this disease. There were others going through the same caregiving tasks as me, and we were able to connect and give eachother support. I really appreciated the amount of knowledge that was present. I have seen that OCF has been doing a steady job of increasing awareness of this disease.

I've personally experienced the results of this organization in...

Increasing awareness about Tobacco use and in HPV connections to Oral Cancer.

If I had to make changes to this organization, I would...

Be a mess- Brian Hill is one of the most amazing coordinators and has a real sense of this disease. I couldnt do anything better.

What I've enjoyed the most about my experience with this nonprofit is...

The entire community and amount of knowledge and information available through the OFC.

The kinds of staff and volunteers that I met were...

I have only had communication via phone and internet. That would be Brian Hill and spoke via internet with many of the contributers to the site.

If this organization had 10 million bucks, it could...

Continue to make the public aware of Oral Cancer and it's contributing factors.

Ways to make it better...

If I hadnt experienced so many of the members die from this disease.

In my opinion, the biggest challenges facing this organization are...

Recieving financial support from the communities that it serves.

One thing I'd also say is that...

I have had amazing support, tons of information to bounce off my husbands doctors with and the knowledge that this disease affects all kinds of people. Old, young, smokers, non smokers, dentists, athletes and will forever be grateful

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Role:  General Member of the Public & recieved great information and support from the Oral Cancer Foundation.