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3 reviews

Review for The Oral Cancer Foundation, Newport Beach, CA, USA

Rating: 5 stars  

This organization’s website is the best source of information for patients and caregivers that are going through diagnosis, treatment and the post treatment for oral cancer. In addition, support and answers to questions can be obtained through the use of the extensive online support forum.

Role:  Professional with expertise in this field

Review for The Oral Cancer Foundation, Newport Beach, CA, USA

Rating: 5 stars  

After being diagnosed with tongue cancer in 2005 I started searching the internet for additional sources of information on Oral Cancer. I was fortunate to find The Oral Cancer Foundation which proved to be the most comprehensive and informative website on the internet.

Not only does this organization provide hundreds of pages of information, it also has a forum for patients and care givers to share their stories and get personal support from those that have been there.

At the time of my diagnosis I was a practicing dentist. (I am now retired) Through the OCF I have developed life-Long relationships with other survivors all over the world and I have been able to share the knowledge I have gained from the OCF with others. To this day every year I lecture to a class of senior dental hygiene students as part of their program. I share my story with them and turn them on to the OCF for information that they will be able to use to save lives.

Role:  Advisor

Review for The Oral Cancer Foundation, Newport Beach, CA, USA

Rating: 5 stars  

Although I did not find the Oral Cancer Foundation until I was home recuperating from my tongue surgery, I have found it to be a way for me to expand my commitment to early detection of oral cancer. As a dentist and an oral cancer survivor, I have found myself in a very unique situation. Since joining the OCF in April of 2005, I have found a new meaning to the term "helping others". The number of people from all walks of life that spend hours of their precious time helping others get through this dreadful disease, is boundless. My OCF "family" have allowed me to meet some of the most generous people in the world. From Brian Hill, the founder, to people in my own neighborhood and people around the world, the OCF forum provides a place for us to gather and help and support survivors, as well as family and friends of oral cancer patients. Being a member of the OCF has spurred me on to be more pro-active in oral cancer awareness, than I ever was before. I have run 3 oral cancer screening events, written articles for local and national dental magazines, aimed at getting dentists to incorporate oral cancer screenings in their offices. I have been the top fund raiser for the OCF cancer walk in Harlem, NYC for the last 2 years. I will also be a speaker at a walk and fund raiser for the OCF this coming September. I try to get to the forum at least once a day looking for ways to use my background to help others. Many people, even the members, are not aware of the vastness of the OCF website. There is no other site that comes close to having the content that the OCF website has. Just looking at the home page,, and the list of links there, will give anyone an idea of how much content is available. The Oral Cancer Foundation website truly is the only place to go for the "answers to questions, advice, support and inspiration".

I've personally experienced the results of this organization in...

that daily visits to the forum show me that this world is filled with caring and generous people that are willing to share some of the most intimate details of their experiences with oral cancer, in order to help others.

If I had to make changes to this organization, I would...

continue it exactly as Brian has done.

What I've enjoyed the most about my experience with this nonprofit is...

that it has given me the opportunity to help others in ways that I never dreamed I would be able to do or be capable of doing. I have made friends around the world and have had the opportunity to meet some of them in my travels.

The kinds of staff and volunteers that I met were...

from the founder, Brian Hill, to the volunteers and paid staff, there is no other organization that I have come in contact with, that has had a more profound effect on my life. I am blessed to have met Brian Hill in person and to call him my friend.

If this organization had 10 million bucks, it could...

add even more than it already has to the world's knowledge about oral cancer. It amazes me as to what Brian et al have accomplished so far and I can't even imagine what could be done with such an amount of money at it's disposal.

Ways to make it better...

there is nothing that could make my experiences with the OCF any better.

In my opinion, the biggest challenges facing this organization are...

MONEY, MONEY, MONEY !!! It breaks my heart to read about it's founder auctioning off some of his personal belongings to raise capital to keep the OCF afloat. In these terrible economic times donations to the OCF as well as all non-profits have been hit.

One thing I'd also say is that...

I wish that I could do more for the OCF and raising the awareness of oral cancer. Having just sold my dental practice (yesterday), becoming semi-retired until the end of the year, I can see this goal being attained sooner, rather than later.

When was your last experience with this nonprofit?


Role:  Volunteer & I am a volunteer, oral cancer survivor, fund raiser and advocate for making the public aware of the oral cancer and the importance of early detection.