My Nonprofit Reviews

Extremely important resource for me as PA patient: their information on the website as well as their facebook group where many patients from all over the world can share experiences and can get very valuable advice from the very knowledgeable moderators. I’m sort of lucky that I could be ‘cured’ by adrenalectomy two years ago, but still I follow the facebook group and learn a lot - amongst others that the disease may return in the other adrenal gland with higher chance than one would hope for, but also hopeful news about upcoming PA drugs. It is amazing how this group serves a world-wide community where people can even write in their own language and get helped. PA is a nasty disease with a difficult and time-consuming diagnostic process that even doctors are often not well aware of. This foundation powers patients and is live changing.

Prof RC Jansen, The Netherlands