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Cslyme

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2 reviews

Review for Michigan Lyme Disease Association, Chesterfield, MI, USA

Rating: 5 stars  

Next month (9-13-2014) will be 21 years with Lyme disease. ( Also had Babesia and Ehrlichia) I would not be here today. if someone from the MLDA did not help me. I was very ill and needed help. The ER Dr. said I would be fine and not to worry. I started volunteering early on. I am the secretary and the person who sends out all the information to those who ask. Over the last 21 years I have sent out tens of
thousands of pieces of literature. We do not charge for any of it. We pay for all the printing and postage ourselves. I am mostly homebound now but still send out information and do what I can.. Through the MLDA I have seen the education of medical personal rise, slowly but surely and it is all through the
hard work of the MLDA.

If I had to make changes to this organization, I would...

I would find an easier way to get grants than always asking our members who are mostly very ill and cannot work.

Will you volunteer or donate to this organization beyond what is required of board members?

Definitely

How much of an impact do you think this organization has?

Life-changing

Will you tell others about this organization?

Definitely

When was your last experience with this nonprofit?

2014

Role:  Board Member
 

Review for Michigan Lyme Disease Association, Chesterfield, MI, USA

Rating: 5 stars  

When I got bit in 1993, there was almost no help from the medical community. I was so sick, most days I didn't know who I was or where I lived. The MLDA helped me in so many ways. When attending support group meetings, then board meetings I found out that they were the only ones interested in getting information to people. iI is hard to function and find information when your brain is swollen. If it wasn't for them, who gave me information to take to my doctor, I am sure I would probably be in a nursing home intead of now being a volunteer and "passing it forward" This is a great organization.

I've personally experienced the results of this organization in...

Yes, because there wasn't information hardly anywhere, and they compiled it for us to take to our doctors. This was life saving for me. As a board member I see the thousands of pieces of information sent out every year and hope that we are educating the public, and people can get treatment early and maybe avoid a long term illness.

If I had to make changes to this organization, I would...

Help them with fundraising and getting more volunteers. Almost everyone on the board is ill. We do so many booths and lectures, it takes a toll on us. So we need more people who aren't ill to help us. We will always continue to educate, no matter what the cost. We are a very good and caring group.

Role:  Board Member & I sought them out for help, and now return the favors.