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VHLMD

373 profile views
1 reviews

Review for VHL Alliance, Boston, MA, USA

Rating: 5 stars  

I am a physican working with VHL patients and patients with many other genetic diseases. The VHL FA is most helpful and best organized genetic support group of any kind. I wish patients with other genetic disorders had a support group as well organized and useful as the VHL FA.

I've personally experienced the results of this organization in...

Improved outcomes for patients.

If I had to make changes to this organization, I would...

None

Role:  Professional with expertise in this field & Physician.