My Nonprofit Reviews
Review for VHL Alliance, Boston, MA, USA
I received my first “The Family Forum” dated June 1, 1993 and probably have ever volume since then on file. They have provided a good reference over the years and have provided valuable information to our family. It was through the VHLFA Hot Line that I learned of the VHL protocol at NIH, and we have been going there since 1996. I am also grateful for The VHL Handbook in dealing with this disease.
I've personally experienced the results of this organization in...
Yes, through my wife and daughters illnes.
If I had to make changes to this organization, I would...
No change recommended