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1 reviews

Review for VHL Alliance, Boston, MA, USA

Rating: 5 stars  

The VHL Family Alliance has taken on and provided support with the most crucial elements surrounding the VHL disease and how it affects the patients, their families, friends, and doctors. The Alliance has been instrumental in getting the word out to the general public about this less common disease and with that, garnering interest and support. We are so grateful for all of its continued efforts!

I've personally experienced the results of this organization in...

The call to action to participate in activities to spread the word about the VHL disease, inform the public about it, and garner support and interest among as many persons as possible.

If I had to make changes to this organization, I would...

I'm not sure of what changes I could make to improve the organization.

Role:  Donor & I donoted through my work.