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Carlos Alberto Fredes

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1 reviews

Review for VHL Alliance, Boston, MA, USA

Rating: 5 stars  

The VHL Family Aliance three years ago helped me knowing about this rare disease and with the support of Joyce Graff we made in Argentina The VHL Family Asociation and now the people who have this rare disease from South America, Latin America and the Caribbean can know about this disease thanks to the information that gives us The VHL Family Aliance.

I've personally experienced the results of this organization in...


If I had to make changes to this organization, I would...

I would give information in differents languages.

Role:  Client Served & I helped the people from South America, Latin America and the Caribbean who have VHL to know about this rare disease.