My Nonprofit Reviews

I am very thankful that NCAN exists. I was diagnosed 5 years ago with NETs in my illeum following a GI bleed. I had been asymptomatic leading up to the diagnosis. I had the area resected quickly after the diagnosis. I have been followed by a care team for 5 years, but the tests being done did not make sense to me - they had all been done prior to the resection and did not show any tumors. For the past 5 years I have been wondering if more should be done. Finally I met a fellow Zebra who told me about this group and gave me a number to call. She followed up with me and made sure I was going to call, it was very important to her. I am so glad she did because I received more information in that 30 minute phone call than I have from my doctors and my own research in the last five years. I was given the names of two specialists in my area, the scans to request, and answers about what to recommend to family members who are concerned for themselves. I can tell this is only the beginning of my relationship with NCAN but I am already so happy that I have found them. Thank you so much for your time!