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rambala

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Review for Indo-US Organization for Rare Diseases, Herndon, VA, USA

Rating: 5 stars  

I am a full-time volunteer for the IndoUSrare organization, and I have had the opportunity to work with the team. All are dedicated and sincere people and they are committed to helping rare disease patients by advocacy and collaboration for public health policy development & implementation. I have seen the organization strives to connect patients living with rare diseases in India and the USA with patient advocacy groups, research, clinical trials, and international Consortia such as IRDiRC, RDI, Global Genes, NORD, RARE-X, and UDNI.
It's not easy to work for a good cause but the people who work here are laser-focused on accelerating therapies for rare diseases and facilitating research collaborations for genetic disorders. Overall I would rate IndoUSrare as an outstanding organization that continues to help many people with rare diseases.

Role:  Volunteer