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Diana R.7

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1 reviews

Review for Chordoma Foundation, Durham, NC, USA

Rating: 5 stars  

After the shock of being diagnosed with Sacral Chordoma over a phone consultation as a 40 year old single mum with no family support I felt lost and devastated. The uncertainty and lack of knowledge and information about this disease made things worse. Thankfully I was signposted to the Chordoma foundation where I found answers to many of my questions and the reliable and up to date essential information needed as Chordoma patient. I remember even using the “questions to ask your doctor” guidance at my first face to face consultation with my surgeon. I am grateful for the Chordoma Foundation and all that they do to help us. I would still feel lost without them.

Role:  Client Served