My Nonprofit Reviews
Review for Amyloidosis Research Consortium Inc, Newton, MA, USA
As a patient, the effect of the ARC on my journey with this disease has truly been profound in at least three dimensions. First: This is a complicated disease, and upon diagnosis it seemed like I was wandering in a wilderness of uncertainty and overwhelmed by trying to deal with what was ahead. The ARC, through its apps such as My Amyloidosis Pathfinder, and its resources such as webinars and curated information helped me to find my path. Second: The ARC, true to its name and mission, has made a real and concrete difference in advancing treatment for all types of amyloidosis through working together with patients, pharma, government, and medical professionals to benefit all of us who have this disease. And third: it has provided me a way to give back for the help that I have received. I am very grateful to Isabel and everyone who has given of themselves in this effort.