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Jossforboss

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1 reviews

Review for NATIONAL TUBEROUS SCLEROSIS, Silver Spring, MD, USA

Rating: 5 stars  

My experience with this nonprofit organization has been very rewarding. The leadership of the the group is "top notch" and really cares about the individuals in the community affected with this rare disease. In my role as an Ambassador for National Tuberous Sclerosis, we share the latest information, research, and opportunities that are available to individuals and families of those dealing with their daily challenges. The medical professionals associated with the group have extensive knowledge and ability to diagnose and make recommendations for individual needs. My involvement includes fundraising, world conference attendance, and advocacy on the state and federal level. We look forward to continued support of the mission "Hope No Matter How Complex"!

Role:  Volunteer