My Nonprofit Reviews

Golden F. - charity reviews, charity ratings, best charities, best nonprofits, search nonprofits

Golden F.

9 profile views
1 reviews

Review for NATIONAL TUBEROUS SCLEROSIS, Silver Spring, MD, USA

Rating: 5 stars  

Tiberius Sclerous Alliance has been so helpful to my family. When my granddaughter was first diagnosed we had no idea where to turn. The Alliance was there to help us understand TS, what it would mean to my granddaughter and our fami,y. They have been there every step of our journey from medical information to educational information. I now volunteer as an Education Parent Mentor for the TSC Alliance to give back some of the support that we have been given.

I am so grateful to the TSC Alliance for their support of medical research and updates, webinars on all areas of concern to parents and professionals and their support of families. I honestly don’t know how we would have made this journey without the Alliance

Role:  Client Served