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delila

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1 reviews

Review for Choroideremia Research Foundation Inc, Springfield, MA, USA

Rating: 5 stars  

Choroideremia Research Foundation has been an invaluable resource for my family for many years. As the mother of a son who is losing his vision, I often turn to CRF for reliable information, support, or advice. The foundation is well-organized, with strong, enlightened leadership. It is accessible and "friendly," in their outreach, while being run very efficiently. Perhaps the best part is the way they bring together people in the Choroideremia family and advocate for ongoing research to cure this discouraging condition.

Role:  Donor