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yair100

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1 reviews

Review for Choroideremia Research Foundation Inc, Springfield, MA, USA

Rating: 5 stars  

My son got diagnosed with choroideremia. We never even heard about this disease. We were in a complete shock and terror. We Googled the term and found this foundation, sent a message and thought maybe they will come back to us in a week or two. After 5 minutes my phone rang, from the other side of the world a foundation representative called me and spent more than an hour talking to me, giving me all the information there is about this condition. This phone call, and many else to follow, was like a saving boat to me, giving me hope. I never heard of a foundation like that, a true family!

Role:  General Member of the Public